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New and So Happy This Site Exsists

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  • New and So Happy This Site Exsists

    OK, I have been struggling with this disease for years now thinking that it was something else or all in my head. I am so thankful that my doctor finaly got sick of seeing me and sent me to a urologist, because without that I think I would still be clueless. I had suffered with what I thought were recurrent UTI's for about 5 years and the dr's would always prescribe antibiotics and pyridium and send me on my way. Sometimes that worked, but for the most part I would end up right back at the dr with no relief. Eventually I became allergic to the Pyridium and Macrobid (for whatever reason) so when I would have an issue there seemed to be no light at the end of the tunnel. Skipping forward, I went to the Urologist as per my referral and was very fortunate to find one who is very familiar with IC and he was very helpful until he left to go to another hospital and I got another dr in the practice. I was very apprehensive about the new dr but after meeting with him the first time I actually like him even more. I didn't realize how lucky I am to have such a great dr until I started reading some of the other nightmare dr stories. Anyway I know I am going on and on. So I just want to say thank you for all the input on here and keep up the good work.

    Dx-IC November 2010
    Hx- Endometriosis, and IBS
    Current Meds- Elmiron, Percocet as needed, Prelief, Motrin, DMSO Bi-weekly
    Last edited by jenniferf; 08-23-2011, 03:03 PM. Reason: forgot treatment

  • #2
    Hello! I'm glad to hear you have a good doctor. Also glad you found this site. It has been incredibly helpful to me.

    Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

    Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

    Other conditions: Migraines, allergies, mild IBS.

    "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)


    • #3
      to the IC Network family.

      Stay safe

      Elmiron Eye Disease Information Center -
      Elmiron Eye Disease Fact Sheet (Downloadable) -

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help:


      Diet list:

      AUA Guidelines:

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Anyone who says something is foolproof hasn't met a determined fool


      • #4