Have been treated for IC for the past year. Am now on seven different meds, including two for hypertension. In addition, am taking gabapentin, percocet, a muscle relaxer for bladder spasms, peridium for burning, and xanax for panic attacks. I had discovered early on that percocet made it hard for me to sleep, so only take it during the daytime hours. At first, my doctor prescribed 3 gabapentin at nighttime with a muscle relaxer, and this was very sedating and kept me asleep most of the night. But as time has worn on, he added two additional gabapentins during the daytime to help with the pain rather than continue to increase the percocet. In the past month I have struggled with severe insomnia, the doctor says it is because my body has become tolerant to the gabapentin. I can take 900 mg of gabapentin, two muscle relaxants, and a 1 mg xanax and still may not be able to sleep at night. I am starting to feel like I'm losing my mind, my quality of life is disappearing, and the only thing my doctor will do for me is send me to a sleep specialist. Of course, there is a month and a half wait to see one. Has anyone had something like this happen to them? My mom says she thinks that all the drugs have caused a serious imbalance in my neurotransmitters and that is the cause of the insomnia. I am so frustrated, I am exhausted already from all the meds and now not sleeping is sending me over the edge. If anyone has any advice or experience with this problem I would really appreciate hearing from you. Thanks.
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Insomnia - could it be too many meds?
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Have been treated for IC for the past year. Am now on seven different meds, including two for hypertension. In addition, am taking gabapentin, percocet, a muscle relaxer for bladder spasms, peridium for burning, and xanax for panic attacks. I had discovered early on that percocet made it hard for me to sleep, so only take it during the daytime hours. At first, my doctor prescribed 3 gabapentin at nighttime with a muscle relaxer, and this was very sedating and kept me asleep most of the night. But as time has worn on, he added two additional gabapentins during the daytime to help with the pain rather than continue to increase the percocet. In the past month I have struggled with severe insomnia, the doctor says it is because my body has become tolerant to the gabapentin. I can take 900 mg of gabapentin, two muscle relaxants, and a 1 mg xanax and still may not be able to sleep at night. I am starting to feel like I'm losing my mind, my quality of life is disappearing, and the only thing my doctor will do for me is send me to a sleep specialist. Of course, there is a month and a half wait to see one. Has anyone had something like this happen to them? My mom says she thinks that all the drugs have caused a serious imbalance in my neurotransmitters and that is the cause of the insomnia. I am so frustrated, I am exhausted already from all the meds and now not sleeping is sending me over the edge. If anyone has any advice or experience with this problem I would really appreciate hearing from you. Thanks.- 27 year old student
- Had symptoms since I was 5
- Been on forums since '07, knew I had this since then, received mild treatment without true diagnosis due to anxiety. Diagnosed by symptoms on 4/08/11.
- Had first horrible flare in 07, bad doctors, had to research IC myself to clue in onto what it was. After following the diet I went into remission.
- Big flare in 09 due to an untreated bladder infection. Went back into remission in 2012.
- Symptoms returned 4/1/15. All of my remissions have ended in April-May or September-October. It sounds like a connection to seasonal allergies to me..
Currently: Continuous Birth Control, vaginal valium (10/6/11), Elmiron (4/08/11), UTA (4/08/11), continuous Trimethoprim for infections (10/6/11), Heating pad, Benedryl, harsh diet
What I know works: Benedryl, diet, birth control, UTA, valium, ditropan, soma
What didn't work: Elavil, vistaril (12/22)
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It's possible that medications can cause insomnia. If you google "Medication Interactions" you can find out if there are any possible problems with the combination of meds you are taking. Are they being prescribed by a pain management specialist?
Not sleeping is awful. I hope you can get to the root of the problem so it can be solved.
Sending gentle hugs,
DonnaStay safe
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Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
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AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
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