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I have not been diagnosed with IC, but my gynecologist suspects it and referred me to a uro-gynecologist.
Since an hour after I had urodynamics for a leakage problem 11 months ago, I have had pain while urinating. Sometimes bad, sometimes not so bad, but virtually every time I urinate.
I had a hysterectomy and bladder and rectal prolapse repairs done by a uro-gynecologist a month after the urodynamics. I don't have leakage anymore, but I still have the urination pain, frequency and sometimes urgency.
That uro-gyno kind of threw the kitchen sink at me for urinary pain - PT, ProSed, Valium suppositories. None of it really worked (and now I know that wasn't the kitchen sink, just a drop in the bucket).
I saw a new uro-gyno Thursday. He did a pelvic exam, said the surgery looked good. He did a bladder ultrasound and I seem to be emptying it OK.
But he said I have blood in my urine (never heard that before) and I remember him talking about white blood cells and red blood cells but for the life of me I can't remember what that was about, but I think he's going to call me after lab results.
He also scheduled an office cystoscopy and is getting my records from my pcp (who treated me for a bladder infection after a positive culture in October - before the hysterectomy) and from the hospital where the surgery was done.
Yesterday I developed a new symptom - my urine is foamy. Of course I looked that up and it seems that means protein in the urine. They'll probably find that in the urinalysis from Thursday, but I'll call tomorrow anyway. Weird, I've never had that before.
Does all this sound like IC? I really thought that it did until I started reading on this forum yesterday. Now I'm not so sure. I know there are a lot of things on the IC diet that do not aggravate my bladder pain, but of course I can't say none of them do.
I liked the new doctor and it seems from my reading here that he is probably doing the "right" things. He came out to the reception desk when I was leaving and patted my hand and said, "We'll figure this out."
I could have had the cystoscopy this Thursday but I have a conflict, so it will be Tuesday morning. I guess I'm just looking for reassurance until then.
Thank you.
Since an hour after I had urodynamics for a leakage problem 11 months ago, I have had pain while urinating. Sometimes bad, sometimes not so bad, but virtually every time I urinate.
I had a hysterectomy and bladder and rectal prolapse repairs done by a uro-gynecologist a month after the urodynamics. I don't have leakage anymore, but I still have the urination pain, frequency and sometimes urgency.
That uro-gyno kind of threw the kitchen sink at me for urinary pain - PT, ProSed, Valium suppositories. None of it really worked (and now I know that wasn't the kitchen sink, just a drop in the bucket).
I saw a new uro-gyno Thursday. He did a pelvic exam, said the surgery looked good. He did a bladder ultrasound and I seem to be emptying it OK.
But he said I have blood in my urine (never heard that before) and I remember him talking about white blood cells and red blood cells but for the life of me I can't remember what that was about, but I think he's going to call me after lab results.
He also scheduled an office cystoscopy and is getting my records from my pcp (who treated me for a bladder infection after a positive culture in October - before the hysterectomy) and from the hospital where the surgery was done.
Yesterday I developed a new symptom - my urine is foamy. Of course I looked that up and it seems that means protein in the urine. They'll probably find that in the urinalysis from Thursday, but I'll call tomorrow anyway. Weird, I've never had that before.
Does all this sound like IC? I really thought that it did until I started reading on this forum yesterday. Now I'm not so sure. I know there are a lot of things on the IC diet that do not aggravate my bladder pain, but of course I can't say none of them do.
I liked the new doctor and it seems from my reading here that he is probably doing the "right" things. He came out to the reception desk when I was leaving and patted my hand and said, "We'll figure this out."
I could have had the cystoscopy this Thursday but I have a conflict, so it will be Tuesday morning. I guess I'm just looking for reassurance until then.
Thank you.
I just want people who are new to know that IT CAN get better, and for every one person who is suffering, there are hundreds of others who feel GREAT because they have control of thier IC. 
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