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Hi everyone,
I'm glad to have somewhere to go talk about my IC. I have been having bladder pain since I was a teenager (I am in my early 30's now). I saw a two different urologists during my 20's, who mentioned that I might have IC, but neither seemed to to take it seriously. One urologist that I saw a few years ago tried to diagnose me by asking me whether I was a type-A personality (?) but didn't think a cytoscopy was necessary. This year, after yet another UTI, the pain became unbearable, and I was finally referred to a urogynecologist. I had a cytoscopy (with distension) two weeks ago that revealed ulcers. I was happy to be diagnosed but also upset that it was so serious and unwilling to dedicate myself to the diet for the first few days. I thought I'd never be able to give up that many foods/drinks all at once, especially coffee, which I thought I could not possibly go without. However, once I got over the initial emotions and dedicated myself to the diet, I realized that it might actually work and that I might get some relief from pain! I am pretty excited about the reduction of pain I am feeling - I feel almost like a new person - after work (when I used to be in extreme pain), I now feel "normal" and can contemplate going out and doing things, instead of getting in my PJ's and waiting for bedtime. I seem to be steadily getting better, despite one set-back that put me in pain for 2 days. My doctor prescribed hyophen for me, which I take three times a day.
So I just wanted to say hello to everyone and also to say thank you for all the information on this site.
-Shebear
I'm glad to have somewhere to go talk about my IC. I have been having bladder pain since I was a teenager (I am in my early 30's now). I saw a two different urologists during my 20's, who mentioned that I might have IC, but neither seemed to to take it seriously. One urologist that I saw a few years ago tried to diagnose me by asking me whether I was a type-A personality (?) but didn't think a cytoscopy was necessary. This year, after yet another UTI, the pain became unbearable, and I was finally referred to a urogynecologist. I had a cytoscopy (with distension) two weeks ago that revealed ulcers. I was happy to be diagnosed but also upset that it was so serious and unwilling to dedicate myself to the diet for the first few days. I thought I'd never be able to give up that many foods/drinks all at once, especially coffee, which I thought I could not possibly go without. However, once I got over the initial emotions and dedicated myself to the diet, I realized that it might actually work and that I might get some relief from pain! I am pretty excited about the reduction of pain I am feeling - I feel almost like a new person - after work (when I used to be in extreme pain), I now feel "normal" and can contemplate going out and doing things, instead of getting in my PJ's and waiting for bedtime. I seem to be steadily getting better, despite one set-back that put me in pain for 2 days. My doctor prescribed hyophen for me, which I take three times a day.
So I just wanted to say hello to everyone and also to say thank you for all the information on this site.
-Shebear
03/11
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