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    Hi everyone,

    I'm glad to have somewhere to go talk about my IC. I have been having bladder pain since I was a teenager (I am in my early 30's now). I saw a two different urologists during my 20's, who mentioned that I might have IC, but neither seemed to to take it seriously. One urologist that I saw a few years ago tried to diagnose me by asking me whether I was a type-A personality (?) but didn't think a cytoscopy was necessary. This year, after yet another UTI, the pain became unbearable, and I was finally referred to a urogynecologist. I had a cytoscopy (with distension) two weeks ago that revealed ulcers. I was happy to be diagnosed but also upset that it was so serious and unwilling to dedicate myself to the diet for the first few days. I thought I'd never be able to give up that many foods/drinks all at once, especially coffee, which I thought I could not possibly go without. However, once I got over the initial emotions and dedicated myself to the diet, I realized that it might actually work and that I might get some relief from pain! I am pretty excited about the reduction of pain I am feeling - I feel almost like a new person - after work (when I used to be in extreme pain), I now feel "normal" and can contemplate going out and doing things, instead of getting in my PJ's and waiting for bedtime. I seem to be steadily getting better, despite one set-back that put me in pain for 2 days. My doctor prescribed hyophen for me, which I take three times a day.

    So I just wanted to say hello to everyone and also to say thank you for all the information on this site.


  • #2

    Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

    Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

    Other conditions: Migraines, allergies, mild IBS.

    "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)


    • #3
      I am so glad you've gotten some answers! That must be such a relief for you! I also find the diet to be extremely helpful, and really not that hard to stick to!
      Symtoms started July 2010.
      Severe pelvic floor pain only.

      2 time PT graduate!
      In medical remission since August 2011; able to eat and drink anything I want currently.

      IC meds:
      200 mg Elmiron in the morning
      100 mg Elmiron @ night
      Macrobid after intercourse

      03/11 07/11 01/12
      If at first you don't succeed: 07/26/2013!


      • #4

        I am happy for you, its a shame it took so long to get proper help.
        <a href=";current=Picture005.jpg" target="_blank"><img src="" border="0" alt="Photobucket" ></a>


        • #5
          Thanks for the welcoming comments, guys. I really appreciate it.