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I have recently met 2 people with IC who have had it for years and none of us knew the other had it. I know it can be embarrassing and difficult to just talk about it all the time but I thought how sad that we could have been supporting each other all this time if any one of us would have just spoken up.
The first time was at a family reunion and after about the 10th time leaving the table to go pee I mentioned to the lady across from me (my husband's cousin) that I had a bladder disease that was flaring up. She asked what and when I told her she said "wow. I have that too".
The the other day I posted a pic of my newly pedicured BLUE toenails on my Facebook in honor of IC awareness when my chat box popped up. It said "yeah, I have that too". It was a friend I have known since 1994 but we no longer live in the same state so don't talk often anymore.
I'm guessing we would all be shocked if we knew of everyone who had this horrid disease! Hopefully the IC Awareness efforts will not only help medical advances but also awareness and get the conversations going about it. So glad I put my blue toes on Facebook!!!
The first time was at a family reunion and after about the 10th time leaving the table to go pee I mentioned to the lady across from me (my husband's cousin) that I had a bladder disease that was flaring up. She asked what and when I told her she said "wow. I have that too".
The the other day I posted a pic of my newly pedicured BLUE toenails on my Facebook in honor of IC awareness when my chat box popped up. It said "yeah, I have that too". It was a friend I have known since 1994 but we no longer live in the same state so don't talk often anymore.
I'm guessing we would all be shocked if we knew of everyone who had this horrid disease! Hopefully the IC Awareness efforts will not only help medical advances but also awareness and get the conversations going about it. So glad I put my blue toes on Facebook!!!
03/11 
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