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  • Wondering

    I found this site while trying to find a reason for my pain. I have been experiencing terrible episodes of pelvic pain on my right side only for three weeks. The pressure and urgent need to urinate is always present during my episodes. They last anywhere from 4 to 12 hours. It seems to go away as suddenly as it comes on. I've had an ultrasound and ct scan ruling out any problem with my ovary or appendix. I don't have any problem with UTI's and am wondering if all IC sufferers have UTI's. I am desperate to find out what is ruining my life. Any feedback would be greatly appreciated.

  • #2
    No not all of us have UTI's.
    Diagnosis: IC '09, vulvodynia '10, fructose intolerance '06, GERD '06, fibromyalgia '09, IBS '10 and TMJ '09, PCOS '11, genital herpes '12

    Current Meds: Butrans patch, welbutrin, lamictol, geodon, xanax, aldactone, linzess, topimax, trazadone and diflucan as needed.

    Meds tried before: Elmiron, elavil, antibiotics, welbutrin, cymbalta, prozac, nerve blocks, instills, nyastatin, flexerol, percocet, naproxen (which was what I was given for pain for years).

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    • #3
      You should go to a urologist if you haven't already to try to figure out what is causing your pain.
      ----------------------
      -Amanda
      34 years old, bladder symptoms all my life
      diagnosed with PFD and VV October 2009; IC May 2010

      Current meds:
      Cystoprotek 2 pills twice a day, Hydroxyzine 10 mg, Gabapentin 600 mg, Myrbetriq 25mg, Zoloft 25 mg, Mircrogestin, capsaicin cream (for vulva)
      Other past treatments:
      IC diet, physical therapy, Traumeel injections as needed, TENS unit, heating pad, instills with sodium bicarb, lidocaine, and mucosa compositum
      Tried and didn't work:
      Pyridium, Singlair, Nortriptyline, Elmiron, lidocaine and heparin instills (worked at first, then didn't anymore), various creams, acupuncture

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