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Thinking of traveling to Johns Hopkins

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  • helen newcastle
    replied
    HI Ruth, could you tell me about your doctor , and what meds, you use. Please could you tell me your symptoms. Thanks so much, Helen
    [email protected].
    Im running out of pain meds, taking Lyrica, oycontin, ambien and lorezepan.Ive had instills 6 yrs ago,I dont want to go the same path again as I feel I started vulverdynia, after self catheters.Im worse sitting, I feel better lying down. My pain moves,from my back to pelvc floor to bladder to my clitoris. I am going to see a pudendal nerve specialist next month,
    HELEN X

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  • curlycue
    replied
    Lowell Parsons

    Can you come and see Dr
    Lowell Parsons here in California? he is the best and he has 25 yrs experience to back that IC up I really trust him good luck

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  • allisun13
    replied
    I think even if they can't helpgoing there may at least help you come to peace with this a little more. If you decide to go let us know how it went. I wish you the best of luck and am sorry you've suffered with this for so many years.

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  • Toto
    replied
    Good luck!

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  • schnauzer
    replied
    Thank you for your reply. I think I am going to do it and I have a LONG list of questions ready. I have high hopes for this. Thanks again

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  • Barbm
    replied
    Think of it as a "consultation". Prepare ahead of time and ask as many questions as you want. Type up your history and the things you have tried and type up your questions and make sure they are all answered. World experts can greatly help you in a tough case. They can give you answers that may help you for years to come!

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  • schnauzer
    started a topic Thinking of traveling to Johns Hopkins

    Thinking of traveling to Johns Hopkins

    I have been suffering for about ten years and have been through all the testing and medications. My main problem seems to be PFD. I have an appointment at Johns Hopkins next week with Dr Tola Fashokun, who seems to be top in the field. Im torn on whether to take on the expense of driving from detroit to baltimore and staying overnight for a consult with this dr. Has anyone ever traveled to hopkins or mayo or any other place and gotten any good results or answers? Any input is appreciated. Thank you/.
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