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Newly diagnosed(ish)

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  • Newly diagnosed(ish)

    Hi Everyone,

    I was diagnosed with IC during my last flare-up. I was seeing the Dr every 2-3 months with cystitis and they would just give me antibiotics (which never seemed effective) and send me away. In the end I insisted that it wasn't normal to have a UTI so frequently. Finally due to a urine culture test I was diagnosed. It was the first time I'd heard of IC, but it was a real load off my mind and I am determined to manage it. I realise I need to see a Urologist for a final confirmation but I've had to push my Dr just to get this far. I feel like he'd say "It can't be cured, so what's the point?"

    It used to affect my work. I'm an archaeologist and digging away outdoors was agonising during a flare up. Thankfully I'm now a student again I don't have to push myself. My biggest concern is my upcoming marriage. I'm really looking forward to it and love my fiancé very much but I know IC will affect our intimacy. Currently tired and cranky from my latest flare up. Trying antihistamines this time... fingers crossed. It's so nice to have found this group. I don't feel so alone.

  • #2
    to the IC Network. I know you'll find a lot of information and support here.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      I'm currently a junior in college and I was diagnosed with a brain tumor in the summer of my freshman year. It thankfully hasn't gotten any worst than mildly affecting my vision(after many visits to multiple doctors), mind connectivity but it has been a challenge on my mental health at certain times. I'm wondering how I should bring this up to my professors that are going to write my reference letters.

      I obviously don't want to use this condition as a crutch, but I want my professors to talk about it if possible in my letters of reference for my post-grad internship. Should I email them with documentation now or should I wait till I'm in person next semester? I have never contacted my school before about this before because I never needed extra accommodations.

      Thank you for any help.
      Last edited by echloe; 09-05-2021, 04:00 PM. Reason: spell missing

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