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Hi everyone,
I'm so glad to have found this support network! I'm a first-wave baby boomer, who has been diagnosed with IC later in life than most. That's somwhat of a blessing, I guess, because I've been challenged by things I never thought I could deal with. But, by just putting one foot in front of the other and going forward, I did. I have my "down" times, but am determined to learn all I can about this new challenge and hopefully use that knowledge to help myself and others with IC and other pelvic pain disorders.
I have to wait until November 4, before I go to Philadelphia to be evaluated and treated by Dr. Whitmore.
I was trying to find a urologist, who really understands IC, but haven't come across him or her as yet.
I do have a wonderful "specialty" gynecologist, who has contacted Dr. Whitmore. Since I have had many surgeries to break-up abdominal adhesions, Dr. Natalya performed an exploratory - advanced robotic laparoscopy - but didn't find the adhesions that she thought might be interfering with the passage of urine from my kidneys to my bladder. She did tell me that she will continue working with me and takes my emergency calls. Love her!
Right now, I'm sticking to the flare foods on the IC diet. (Apparently, I tried too hard, basically eliminated potassium from my diet, and found myself in the ER with my heart racing, sweating, and cramps up and down my legs.) Don't do this, IC'ers. I'm fine now. But, I had to stay in the hospital overnight, while the wonderful staff pumped potassium into my body via IV. Ouch.
I'm also using Prelief (Walgreens); Desert Harvest Aloe Vera Capsules, which I honestly believe are working, and am taking Cymbalta, which I think is also working. When I feel a flare coming: Advil, heating pad, cold packs, pyridium, baking soda in warm water. If all else fails, I take 15mg extended relief morphine. (I'm allergic to most commonly used pain killers). Dr. Natalya does not want me to suffer to the point that I am crying. Bless her.
Hope this isn't too long.
Emy
I'm so glad to have found this support network! I'm a first-wave baby boomer, who has been diagnosed with IC later in life than most. That's somwhat of a blessing, I guess, because I've been challenged by things I never thought I could deal with. But, by just putting one foot in front of the other and going forward, I did. I have my "down" times, but am determined to learn all I can about this new challenge and hopefully use that knowledge to help myself and others with IC and other pelvic pain disorders.
I have to wait until November 4, before I go to Philadelphia to be evaluated and treated by Dr. Whitmore.
I was trying to find a urologist, who really understands IC, but haven't come across him or her as yet.
I do have a wonderful "specialty" gynecologist, who has contacted Dr. Whitmore. Since I have had many surgeries to break-up abdominal adhesions, Dr. Natalya performed an exploratory - advanced robotic laparoscopy - but didn't find the adhesions that she thought might be interfering with the passage of urine from my kidneys to my bladder. She did tell me that she will continue working with me and takes my emergency calls. Love her!
Right now, I'm sticking to the flare foods on the IC diet. (Apparently, I tried too hard, basically eliminated potassium from my diet, and found myself in the ER with my heart racing, sweating, and cramps up and down my legs.) Don't do this, IC'ers. I'm fine now. But, I had to stay in the hospital overnight, while the wonderful staff pumped potassium into my body via IV. Ouch.
I'm also using Prelief (Walgreens); Desert Harvest Aloe Vera Capsules, which I honestly believe are working, and am taking Cymbalta, which I think is also working. When I feel a flare coming: Advil, heating pad, cold packs, pyridium, baking soda in warm water. If all else fails, I take 15mg extended relief morphine. (I'm allergic to most commonly used pain killers). Dr. Natalya does not want me to suffer to the point that I am crying. Bless her.
Hope this isn't too long.
Emy
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