Hello everyone,
I've been diagnosed with IC for a year now. I have tried Elmiron, instillations, and am currently on a blend of glucosamine, loratidine, tagamet, neurontin, atarax, lorcet, and vesicare. These where working relatively well until I lowered the dose of prednisone I was taking for another illness. I currently have 27 health conditions including:fibromyalgia, relapsing polychondritis, type 2 diabetes, hypothyroidism, and IC just to name a few. Managing medicines and diets for all these different problems is getting to be a huge hassle. I was supposed to see my urologist in November but called their office begging to be seen sooner, and have an appointment on Monday. Apparently if you say you are ready to remove your bladder with a dull spoon they take you seriously, who knew? Prior to the current combination of meds that I am on for my IC, my urologist told me if they didn't work bladder removal was the only other option he could see. So needless to say I'm scared. I know the stress from worrying about that isn't doing me any favors either. I'm only 27 and can't imagine having to have my bladder removed at this point in time. No one in my family understands the pain this causes, and if I hear "at least its not a UTI" one more time I may strangle someone!
I was very happy to find this forum, and hope to get to know you all.
I've been diagnosed with IC for a year now. I have tried Elmiron, instillations, and am currently on a blend of glucosamine, loratidine, tagamet, neurontin, atarax, lorcet, and vesicare. These where working relatively well until I lowered the dose of prednisone I was taking for another illness. I currently have 27 health conditions including:fibromyalgia, relapsing polychondritis, type 2 diabetes, hypothyroidism, and IC just to name a few. Managing medicines and diets for all these different problems is getting to be a huge hassle. I was supposed to see my urologist in November but called their office begging to be seen sooner, and have an appointment on Monday. Apparently if you say you are ready to remove your bladder with a dull spoon they take you seriously, who knew? Prior to the current combination of meds that I am on for my IC, my urologist told me if they didn't work bladder removal was the only other option he could see. So needless to say I'm scared. I know the stress from worrying about that isn't doing me any favors either. I'm only 27 and can't imagine having to have my bladder removed at this point in time. No one in my family understands the pain this causes, and if I hear "at least its not a UTI" one more time I may strangle someone!

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