
First indication of problem occurs with a noticeable fatige in upper legs. Within an hour or so very painful urinary pain occurs (presumably inflamation of the urinary system). Pain, throbbing occassionally of the bladder, frequent urination with little urine produced, when urinating muscles continue to try to expel urine - very painful (like when you get sick and dry heave). Essentially the pain and symptoms are like a UTI. No infection is noted in these instances. The episodes last 9-12 days and occurr up to 8 times a year. This has went on for about 10 years. Pain originally was mild and episodes were less frequent and only lasted a few days.
Various tests have been done. No diagnosis.
Almost vitamin B deficient. (levels very low for many years now)
Vitamin D deficient (unknown how long)
Liver does not like any meds that process through the liver. (no ibprofen or pyridien)
Confusion and dizziness are not uncommon with or without the flare-up.
IC was declined as a diagnosis because I could hold fluid without pain during a urinary test. I am still not certain about this part.
The questions are:
What should I do now, my doctors do not know what to do with me?
What could this be and how should I proceed?
Any other suggestions?
Currently on Vesicare and Gabapetin along with the appropriate vitamin supplements. I can no longer take items that process through the liver, past episodes were treated with ibprofen and pyridien and now the doctor thinks my liver starts inflaming right away. I am uncertain if the liver issue occurs before or after the intake of the otc meds. I will not know until the next episode.
Any help out there?
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