maybe she does?

[nariu]

We are going to see a urologist in June, but I am devestated. she is five.
Does anyone read/answer in this section?

[ryanm]

I am so sorry to hear about your daughter! I bet you've been really scared. Have you read the handbook yet? There is some really helpful information in there. Is she in school? Hopefully they're being flexible if she is. Does she have all the classic symptoms?

It's a terrible thing when sicknesses strike our youngsters. You both are in my prayers!!!

[nariu]

Yes, she has classic symtoms - frequency, urgency, and aslo leaks with her urgency and wets the bed constantly. I know bed wetting in itself is not abnormal for a 5 year old, but the other is. But like me, she doesn't seem to have any pain.

My daughter has been in a wonderful preschool all year (to help her with language delay - which it has tremendously) and I am getting ready to put her in kindergarten in the fall. With her special needs I am searching hard for an appropriate teacher - and driving the front office nuts because they want me to just take whatever they dish out! WRONG!!

Thanks for responding - seeing her with the symtoms is harder than facing them myself because I REMEMBER being a kid with this and it was hell.

nariu, mom of three

[Teri]

{{{{{nariu}}}}} I am praying for you and your little girl. Hopefully it won't be IC and it will be something easy to deal with. PLEASE keep us posted, k teri

[kimmi158]

Hi,my daughter who is six is going through the same thing.She wets her pants all the time and it really upsets her.Most of the doc. I have taken her to said she is just trying to get attention.[bull]Then why does she end up with uti's all the time.Well I finally found a doc who is sending her to another uro on the 30th of this month.so I hope something will be done.I have been going through this with her for years something needs to be done.I also have ic and I am having a terrible time with it.I just had a dmso done today so if this doesn't make sense its because the dmso makes me very light headed,but I wanted yoou to know if you need someone to talk to or to vent or cry or whatever I am here.
My email address is [email protected] will be glad to email you or you can leave me messages here and I will answer them here,I check this site at least three times a day.
Lots of hugs and prayers,
Kim

[ldwall]

First let me tell you the current medical diagnositc standard for IC specifically states that it cannot be IC if the patient is under 18 years old. That said, my daughter also is suspected of having IC. She even takes meds normally perscribed for IC (imiprimine and ditropan). She has frequency, urgency and at least once a year large amounts of blood in her urine for a day or two. She has a bit of pelvic pain also. She has not been given the traditional tests for IC because of the diagnostic criteria. Many doctors, most likely those with strict rules from a HMO, will not diagnose IC for a child. Stating that it is just not possible, however we all know the truth. Whatever is wrong with your daughter, just remember that the name is not always the most important thing, make sure the treatment is. My daughter is getting treated as if it is IC or something similar.....that is all that matters to me. Her urologist treated her symptoms aggressively and now she is in a long remission.......and free of discomfort. So I don't really care what they call it as long as she is getting good treatment.

I have had IC since I was a small child. I was even diagnosed with bladder problems back when I was 10 months old, it just took until I was 23 to get the IC diagnosis. I know that your daughter can learn to live with whatever is wrong with her bladder, and that she can get good care despite a lack of diagnosis. If she is not getting good care.....find another doc, but I suggest that you don't try to force an IC diagnosis, they may have their hands tied on that one. I wish you and your daughter the best. Lisa

[nariu]

yes, well my urologist said they used to think it was only an adult disease, but are finding in in children now - so I doubt I will have a problem with him.
However I doubt I will get a straight forward dx either, becasue I refuse to put her through the tests - too scary.
Anyway, thanks all for replying, it is helping me a lot.

[Drama_Queen16]

I am so sorry to hear this, I really feel for her because I have been dealing with IC since I was 7 and I know what it's like to have to deal with it as a kid - not fun. (Not that it's any MORE fun now that I'm a teenager... )
I did not know that you had to be 18 to be officially diagnosed. I was diagnosed when I was 14, and I am 16 now.
I know the cysto/hydro is a lot to put her though, but I would really recommend that she have it done. It is often the only way to make a doctor believe that you have IC and actually start treating you for it. When I was younger, my uro told my mom that there was no point in doing one because a 7 year old could not have IC. If only he had done it, it would have been disovered 7 years earlier and maybe would not have had the chance to progress as far as it has.
Again, I'm really sorry you have to deal with this with her. Let us know how things go.
((hugs))

[Amanda]

I am 17 and have had symptoms since I was 15, and was diagnosed a year later.

If there is any questions you want to ask me or even if you just need to talk, e-mail me.

You and your daughter are in my thoughts and prayers.

Amanda
([email protected])

[redstonebef]

My daughter that is 36 had her first urethra surgery at 15. and she had been having lots of problems before that. Yes, she has IC. My prayers are with you when one is so young as yours. Hugs to you and her and hopefully she will get help soon.
redstonebef

[MSBIGFULTON]

MY PRAYERS ARE WITH YOUR DAUGHTER, PLEASE INSIST ON WHATEVER IT TAKES TO MAKE YOUR DAUGHTER HEALTHY AGAIN....IT TOOK ME OVER 6 YEARS TO BE DIAGNOSED AND IT HAS BEEN H**L EVER SINCE, BUT ATLEAST IT IS NOT ALL IN MY HEAD....GOOD LUCK