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4 y/o daugher with voiding symptoms. Any thoughts?

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  • #16
    Re: 4 y/o daugher with voiding symptoms. Any thoughts?

    Hi, My 5 year old has been suffering with these symptoms including urine frequency (every 15 minutes) and "dripping" in her knickers. We have been going through this for over a year and seen numerous doctors and urologists and they have all come back with nothing.

    Jill, i just wondered if you found out what it was that was causing this problem and if it is IC?

    Please, please help. I know you don't like being of the forum as it scares you, I'm exactly the same. I'm constantly worrying and feel like I don't know where else to turn.

    Thanks

    Hannah xxx

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    • #17
      Re: 4 y/o daugher with voiding symptoms. Any thoughts?

      Originally posted by HAN4H View Post
      Hi, My 5 year old has been suffering with these symptoms including urine frequency (every 15 minutes) and "dripping" in her knickers. We have been going through this for over a year and seen numerous doctors and urologists and they have all come back with nothing.

      Jill, i just wondered if you found out what it was that was causing this problem and if it is IC?

      Please, please help. I know you don't like being of the forum as it scares you, I'm exactly the same. I'm constantly worrying and feel like I don't know where else to turn.

      Thanks

      Hannah xxx
      Hi Hannah,

      I've had IC since I was a child (received an "official" diagnosis several years ago when I was in my mid 30s).
      Have any of the doctors done a cystoscopy to look for bladder/urethral inflammationn or an MRI of your daughter's urinary system to check for abnormalities or a urethral diverticulum? The doctor who finally diagnosed me with IC at first suspected a urethral diverticulum when I complained of urinary frequency and a sensation of leakage. From Medscape: The pathophysiology of most cases of urethral diverticula appears to revolve around obstruction of and infection within the paraurethral glands. The glands are thought to become enlarged and inflamed, eventually forming a retention cyst and then an abscess, which ruptures back into the urethra. I had to change doctors due to health insurance issues and ended up seeing a urogynecologist (which specialize in female urinary problems). You may have better luck with this type of doctor. I hope you find an answer soon - my heart is with you and your daughter

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      • #18
        Re: 4 y/o daugher with voiding symptoms. Any thoughts?

        Thank you so so much for your reply. I know it sounds daft but I'm very emotional over your reply as the most of the doctors and urologists are suggesting that it is in her head and I know it isn't, so to have someone talk to me about it feels great.

        The doctors have not done a cyctoscopy as they have said its an invasive procedure, I have asked for one but they said they don't want to do it. Emily has had a scan, but I'm not sure if it was an MRI, I am seeing a nurse at Manchester children's hospital tomorrow, (We live in the UK, are you in the UK or in America?) I will ask at the appointment. The scan of the bladder showed that Emily empties her bladder at only 15% full. I will also ask about urethral diverticulum or an abnormality in her urinary system. Thank you for your suggestions.

        Can I ask, what where your symptoms as a child?

        Thank you so much for your reply.

        Hannah xxxx

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        • #19
          Re: 4 y/o daugher with voiding symptoms. Any thoughts?

          My daughter was diagnosed with IC when she was 5. She had UTI's and she also had UTI symptoms with no active UTI. She had severe pain that happened whenever. Not just with urinating. Her Urologist did a cystoscopy and she was diagnosed with IC. We started the IC diet and Elmiron. She has improved greatly. She did just recently have another UTI and has been having some mild pain, so her Dr has suggested aloe vera pills along with her Elmiron. My first suggestion would be to cut any chocolate, red dye or acidy food out of her diet. I hope your little one finds relief soon!

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          • #20
            Re: 4 y/o daugher with voiding symptoms. Any thoughts?

            Hi Hannah, It doesn't sound daft at all. i would be distraught if my child was experiencing this. From as far back as I can remember I had to urinate more often than everyone I knew. As I got older there was a constant sensation of pressure/fullness in my urethra. Like something was stuck in there and needed to be pushed out. When I emptied my bladder I would continue to feel like there was more and would strain to squeeze out every last drop. this would leave my pelvic muscles achy. I recently learned that one of the doctors my parents had taken me to (around age 10-11) suggested a scope but my parents decided against it, fearing it would be too traumatic for me. I wish they had asked me because I would have agreed to anything to get answers. there were also doctors who suggested a "nervous bladder" and that anxiety was the cause of my problem. Well, this made me feel like it was all in my head - even though I knew it wasn't. When I was a teenager I learned I had scoliosis (mild) and began seeing a chiropractor who suspected nerve irritation from my spinal curvature could be the cause of my bladder problem. Adjustments helped a little but did not solve the problem. I continued seeing chiropractors until my late 20s when I felt like it was not really benefiting me enough to incur the cost. I now manage my IC with dietary changes, rx meds, and supplements (and occasional installations).

            I highly suggest trying the IC diet. Since there is no cure for IC and this is one of the "treatments" for it, it may help your daughter's symptoms if she does indeed have IC (it may also help her healthcare providers with a diagnosis). For me, anything with caffeine, acid or too much spice will cause me pain and increased frequency within hours. So does chocolate. But I can't keep away from it for too long, so whenever I have some I have to take an antihistamine!

            I wish you luck at the nurse visit tomorrow and hope she is able to give you some answers. As a child, it was really hard for me to explain my symptoms and hard for people without IC to understand and I think that is a big obstacle when trying to diagnose a child. Your daughter is lucky to have a mum like you who pushes for answers! BTW, I'm in America. Please feel free to ask me anything any time!

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            • #21
              Re: 4 y/o daugher with voiding symptoms. Any thoughts?

              Originally posted by HAN4H View Post
              Thank you so so much for your reply. I know it sounds daft but I'm very emotional over your reply as the most of the doctors and urologists are suggesting that it is in her head and I know it isn't, so to have someone talk to me about it feels great.

              The doctors have not done a cyctoscopy as they have said its an invasive procedure, I have asked for one but they said they don't want to do it. Emily has had a scan, but I'm not sure if it was an MRI, I am seeing a nurse at Manchester children's hospital tomorrow, (We live in the UK, are you in the UK or in America?) I will ask at the appointment. The scan of the bladder showed that Emily empties her bladder at only 15% full. I will also ask about urethral diverticulum or an abnormality in her urinary system. Thank you for your suggestions.

              Can I ask, what where your symptoms as a child?

              Thank you so much for your reply.

              Hannah xxxx

              Dear Hannah

              I live in the Uk I have IC and my daughter who is now 5 started suffering from urinary problems at age 3 one specialist dr suggested she had Painful bladder syndrome (IC) another said it was in her head. I was at my wits end. She is doing really well now - the last blip she had lasted for 12 hrs , 6 months ago. We are both under the care of a wonderful dr who has treated and advised both of us. The dr is not too far from Manchester. Please email me at [email protected] if you would like any more information.

              best wishes to you both Alison xx

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