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    Hi, my name is Melanie and I have had IC since childhood... since I can remember. I was not diagnosed until I was 22 so as you can imagine I had many issues growing up with bladder pain, frequency, urgency, and no way to explain it to anyone. I am so glad to hear that it is now recognized in children... i could have been saved a lot of trouble if someone had noticed it wasn't normal for a child to have a uti every month. I had behavior problems and depression as a child as well and I am sure it was from the difficulty living with IC. If I can offer any support to someone who has a child with IC I would feel that my disease was not just a terrible curse I have to live with but a way to promote awareness and healing. Thanks

  • #2
    I'd just like to say to the IC Network family.

    Warm hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      I do realize you are an adult now. Oh! I am 46, by the way. I first went to see a urologist about excessive urination 16 years ago.(March 1997)(and diagnosed with IC 6 months later) OK. I was not having problems as a juvenile, but I can just imagine my childhood years would have sucked if I did. (or some of my childhood) Of course, it sucks to have IC as an adult as well. I can see why you were having behavioral problems, but we can be thankful that part is in the past by now. Oh, yeah!

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      • #4
        That was very nice of you to offer HOPE to others, especially the children!
        Love the person, hate the sin!

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