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10 year old daughter with IC

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  • 10 year old daughter with IC

    Hello,

    It's been awhile since I've been on the boards. My 10 year old daughter has been doing fairly well with IC for the past few years. She is currently in a flare that is not going away as quickly as usual. Saw her primary doctor today who tested her for a UTI which is negative. I have her on a strict IC diet to try and bring the flare under control. We see her urologist in a week. Any other thoughts on what I can do to help her through this? Also, I'd love to hear from any other parents of kids with IC. I feel very alone right now...

    Jill
    "Where there is hope there can be faith. Where there is faith, miracles can occur."

  • #2
    Re: 10 year old daughter with IC

    I know it's difficult, but have you ever tracked what she's eating to try and see if her flares are being caused by a specific food? I ask that because some ICers find that they are sensitive to some foods on the safe list.
    Also, has your daughter ever been tested for food allergies? Is she able to take Azo for Urinary Pain Relief? Do cold packs or heating pads provide her any relief?

    "When you gotta go, you gotta go!"

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    • #3
      Re: 10 year old daughter with IC

      You might ask her doctor about trying some Tums --- sometimes that will help get rid of a flare. I sometimes use it instead of the soda that many ICers use. A food diary might help find something that's irritating.

      I think it's worse for us to see our children suffer than it is to have it ourselves. My heart goes out to you.


      Donna
      Stay safe


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      • #4
        Re: 10 year old daughter with IC

        Thanks ladies. I appreciate the good advice. It seems like her flare is slowly going away. Fingers crossed. Every day seems just a little bit better. I have her on a very strict IC diet and I think it's slowly helping. It's so awful to watch her be in pain:-(

        Jill
        "Where there is hope there can be faith. Where there is faith, miracles can occur."

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        • #5
          Re: 10 year old daughter with IC

          Oh geez, I am so sorry to hear about your daughter. This disease is so hard for an adult to deal with let alone a child. My heart goes out to you and your daughter. Donna is right, it is very hard for a mother to see her child in pain and to feel helpless on top of it. God bless her. I am glad she is doing a little better. Hopefully the flare goes away fast. Hugs..

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          • #6
            Re: 10 year old daughter with IC

            The other thing that I would consider throwing out there is pelvic floor dysfunction. When I was a child, my first bladder symptoms began in 7th grade.. when I had frequency and urgency. But, what I also had was a very narrow urethra which, back then, they treated with dozens of urethral dilations. Of course, today, we now understand that muscle tension in the pelvis is often the driving force behind urethral tension. Soo, in hindsight, I have to wonder if I had mega tension back then... probably from something as simple as riding a bike or falling on my tail bone.

            Remember, too, that flares can be from multiple sources.. both the bladder wall and the pelvic floor.

            It might be interesting for her to have a pelvic floor workup... if not just an external examination to look for tension in the legs, hips, butt, abdomen. Not sure about having an internal exam at that age.... but maybe a pelvic floor physical therapist might have some ideas on how to assess it in a child that age that is the least traumatic!

            Jill
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            • #7
              Re: 10 year old daughter with IC

              Thank you Jen and Jill. Jill, I would have never thought about a pelvic floor flare. I talked to you on the phone about 6 or so months ago on the phone. I also live in Santa Rosa and she will be seeing Dr. Fletcher. Last time she had suggested starting her on biofeedback and trying a gluten free diet. She was doing well at the time, so I didn't think we needed to do all that at the time. I wonder if biofeedback would access her pelvic floor then? Or is biofeedback more for frequency issues? Her main issue is pain. The frequency isn't too bad...I might have to purchase a phone call with you very soon. It would be helpful to bounce all the various things going on in my head...

              Jill
              "Where there is hope there can be faith. Where there is faith, miracles can occur."

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