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Introduction
Hello,
I'm new and just wanted to introduce myself. I am 23 and was diagnosed with IC a year ago. I have never had any pain (thank God) only frequency. I did all the oral meds like elavil and elmiron. I struggled with this thru my last year of nursing (graduation is this Friday), I also have a husband and 2 little girls. In the beginning i just wanted to die. I had massive pressure and after talking with an IC advocate I convinced my family doctoe to give me the atarax and elmiron. The elmiron did nothing. i took it for 7 months. I also threw out the elavil after gaining 30 pounds. I still take the atarax and I also have bladder instillations of heparin, marcaine, and bicarb. I started with one a week and now it's been 5 weeks. I am having a little trouble at the moment but it's almost period time and with school I've neglected my treatments. I'm going as soon as I can to get one. I've also been drinking alot of diet coke and eating chocolate which is so stupid. I knew they were my bad foods. Jill has told me over and over not to drink diet coke. IC is so weird. I drink one and when it doesn't cause any problems I keep right on drinking them and then BOOM...I'm in a flare. Hopefully this one will be like all the others. An extra 25mg of atarax a day, lots of bottled water, a good diet and rest and it should go away in a couple days. Sooner if I get that treatment. It's just a long drive to get them. My urologist only comes to my town 1 day a week. I had an appt for Monday but they called and changed it so i may have to do the long drive. I also tried the cysta q, algonot, and aloe vera. The aloe soothed me a little but the rest showed no improvement. I'm thinking of trying the cysta q again. I only took it for a couple of weeks the rest I tried for months. I even tried the alkalizing diet Amrit Willis wrote about. It's called Solving the IC puzzle. Waste of time and money. The atarax helps alot for me and not drinking soda. Sex is usually not a problem. My main triggers are eating chocolate, drinking diet soda, and stress. I used to get so scared. Everytime i had a flare i would call my advocate or e-mail someone in tears. I found it that they always go away eventually. The key is to treat the symptoms as they begin and not let them get out of control. Then once the bladder heals itself, your better. I guess you could say I poured salt on the wound by drinking diet soda after I noticed my symptoms were slowly coming back. Nothing has ever been as bad as that first flare. i always try to ctach them early. I never felt better than I did with the treatments. I could kick myself for neglecting them. I'm gonna get one though asap. Then things will get better. Well I hope to talk to you all soon. i hope we can give each other support, congradulations, and even a shoulder to cry on. I just always have to keep reminding myself that this flare will not last forever.
God Bless and keep praying for a cure.
Kenzy
I'm new and just wanted to introduce myself. I am 23 and was diagnosed with IC a year ago. I have never had any pain (thank God) only frequency. I did all the oral meds like elavil and elmiron. I struggled with this thru my last year of nursing (graduation is this Friday), I also have a husband and 2 little girls. In the beginning i just wanted to die. I had massive pressure and after talking with an IC advocate I convinced my family doctoe to give me the atarax and elmiron. The elmiron did nothing. i took it for 7 months. I also threw out the elavil after gaining 30 pounds. I still take the atarax and I also have bladder instillations of heparin, marcaine, and bicarb. I started with one a week and now it's been 5 weeks. I am having a little trouble at the moment but it's almost period time and with school I've neglected my treatments. I'm going as soon as I can to get one. I've also been drinking alot of diet coke and eating chocolate which is so stupid. I knew they were my bad foods. Jill has told me over and over not to drink diet coke. IC is so weird. I drink one and when it doesn't cause any problems I keep right on drinking them and then BOOM...I'm in a flare. Hopefully this one will be like all the others. An extra 25mg of atarax a day, lots of bottled water, a good diet and rest and it should go away in a couple days. Sooner if I get that treatment. It's just a long drive to get them. My urologist only comes to my town 1 day a week. I had an appt for Monday but they called and changed it so i may have to do the long drive. I also tried the cysta q, algonot, and aloe vera. The aloe soothed me a little but the rest showed no improvement. I'm thinking of trying the cysta q again. I only took it for a couple of weeks the rest I tried for months. I even tried the alkalizing diet Amrit Willis wrote about. It's called Solving the IC puzzle. Waste of time and money. The atarax helps alot for me and not drinking soda. Sex is usually not a problem. My main triggers are eating chocolate, drinking diet soda, and stress. I used to get so scared. Everytime i had a flare i would call my advocate or e-mail someone in tears. I found it that they always go away eventually. The key is to treat the symptoms as they begin and not let them get out of control. Then once the bladder heals itself, your better. I guess you could say I poured salt on the wound by drinking diet soda after I noticed my symptoms were slowly coming back. Nothing has ever been as bad as that first flare. i always try to ctach them early. I never felt better than I did with the treatments. I could kick myself for neglecting them. I'm gonna get one though asap. Then things will get better. Well I hope to talk to you all soon. i hope we can give each other support, congradulations, and even a shoulder to cry on. I just always have to keep reminding myself that this flare will not last forever.
God Bless and keep praying for a cure.
Kenzy
Another nurse with ic and who will understand it. There are alot of nurses on this site and it is great. I have had ic for years and then went into remisson and then in the summerof 2002, went back to ic after kidney stones and chronic utis. I also have the overactive bladder with it, suffer from depression, underactive throyid, degenrating disc in my back, migrane headaches. Haven't had a headache for awhile. I just had surgery last week to remove adhesions. I had a hysto in 91. I am glad that you found us. Keep posting and coming on here to talk. we are here for you. Congrats agin on your graduation. 
But the good thing about it is that once you've made a 3-tiered cake and had to hang out with 6 pounds of frosting all day long, it's really just not appetizing anymore... hehe blink
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