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  • #1

    How I cope

    I am Chris and 24 and graduated college last year. I have had IC all my life and needed to pee sometimes as often as every 15 minutes - usually about once an hour. I wet at nights as well. I cope by wearing diapers at night and Depend protective undies during the day. I pee in small amounts because my bladder holds very little before feeling like its about to bust. I tried just wearing undies and hoping for the best and too many accidents and close calls. So protection is a must for me. Then even when false alarms happen and the bladder gets painful I do not have to worry about peeing all over the place. But for me as soon as it hits it hurts.

    My roommates all have been understanding. The school knew I have a disability so diapering was no big deal.
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  • #2
    to the IC Network.

    Are you working with a urologist to try to help find a cause for your incontinence? Incontinence is not usually a part of IC. Have you tried physical therapy?

    Warm healing thoughts,
    Donna
    Stay safe


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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.     [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      What happens with me is sudden urges happen and sometimes they are false alarms and I can hold it though it hurts. Sometimes I go to let out and only small amounts come out because that is all my bladder is holding. But the protection is for convenience more than anything else. On a long drive when the pain hits its easier to let out when I need to rather than looking for a place to go. Usually I average a couple times a week when I lose control because of the severe pain. Its very unpredictable. Sometimes I feel okay down there and other times even after going it still feels like I have to. I am working with doctors and have some medication to relieve the pain when it flares up. I have heard some sort of incontinence issues are not unusual but its not usually constant. Its all in how sensitive the bladder walls are at the time the bladder begins to fill up. I can hold at most about a pint. My bladder has not grown much because of the problems.

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      • #4
        Hi Chris,
        Your explanation makes so much sense to me. I'm a teacher & can't leave the classroom unless it's during passing periods, so I understand the worry about accidents. I wear Poise and the crazy thing is that since people know about my bladder, they often tell me about theirs, and a LOT of teachers seem to wear pads just in case...

        What I'm also impressed by is that you haven't let IC stop you from college or living with roommates AND that you have the confidence level to just take care of what you need without being afraid of what others think! It took a long time for me to get there & you've done it so young!

        Congratulations on your degree and thank you for sharing what's worked for you.
        Cheers,
        Kadi

        -------------------------------------------------------------
        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        ------------------------------------------------------


        New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
        Source - Pinterest
        "

        Current treatments:
        -IC diet
        -Elavil 50mg at night
        -Continuous use birth control pills (4-5 periods/year)
        -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
        -Pyridium if needed,
        -Pain medicine at bedtime daily, as needed during the day several times per week
        -Antibiotic when doing an instillation to prevent UTI
        -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
        -Dye Free Benadryl 50 mg at bedtime
        -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
        -Managing stress= VERY important!
        -Fur therapy: Hugging the cat!

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        • #5
          I hope the uro is helping you as much as he can. I am so sorry to hear that you have had this for so many years. blessyou and take care pray for a cure
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