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  • Attendance

    I'm currently in my 2nd year of uni and my IC causes me problems with attendance, somedays i am just in too much pain i cant even get out of bed/dressed let alone make it in to uni...my doctor wouldn't give me some sort of letter to excuse me from lessons, he said i would have to come in and get the note on the day...but im sure you guys can understand when i say with the pain this wouldn't be physically possible. I'm feeling really frustrated because i dont really know what i can do, and whenever i've tried to explain to a tutor they dont understand the illness, like most people!

  • #2
    Ic

    All of us here understand and I hope you feel better real soon.
    I pray daily and I hope they find a cure real soon to this dipilitating desease.
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    • #3
      I would think that your doctor should be able to give you some sort of letter stating that you have interstitial cystitis, a painful bladder disease. Have you talked with the disabilities office at your school?

      Warm hugs,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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      • #4
        Sounds like you need a new doctor. A specialist maybe. I would also then go to your schools disabilities/special needs office. All universities have them. Good luck.
        Darcy

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        • #5
          A good doctor can and will give you a note. My first two years of uni, I carried a doctors note with me, and at the start of the quarter gave them to my professors. Even if I didn't have the note, simply explaining my condition and the problems it could cause got most teachers to work with me.

          That said, I have also switched almost entirely to online classes, because I can't sit through a lecture at all anymore. I would definitely suggest looking into online coursework, it has enabled me to nearly finish my AA.
          Clark College Junior, wanting to go to UW for Fine Art Degree
          Major: Fine Art
          Taking a course in medical transcription, must work from home
          IC diagnosed 07/07
          PFD developed sometime during late 07
          Uterine Cyst removed 12/09
          Chronic Pelvic pain developed in 09
          Chronic Back Pain developed in 09
          Possible vulvodynia

          Medications: Elmiron, Detrol LA, BC, Prosed DS, Celexa for anxiety, depression, and pain,
          No longer taking: Atarax (No help),Amytriptalene (no effect, became suicidal), Ditropan (no effect), Probiotics (sick to stomach), Bactrim (hopefully cleared up my UTI!), avoiding Pyridium unless absolutely needed (sick to stomach), Prozac (helped anxiety, no pain relief), Pamelor (gained nearly 20 lbs in a short time, no anxiety relief), Valium, Vicodin, percocet (none of these meds even touch my pain >_<)

          Current Therapies: acupuncture, heat, Vicodin if needed, lots of laying down, gaming as a distraction, Pain Management classes started 9/22, Wanting to try TENS therapy

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          • #6
            Disability services

            Are you in the US? I just went through disability services at my university because I was having the same problem. It's really nice. They verify it with my doctor and then contact my professors saying I have a disability and will occasionally miss class and may need to leave in the middle of a lecture. So I don't have to go to my professors and say "So, prof. I pee. A lot. So don't mind me if I get up a couple times in a lecture." Cause that's kind of embarrassing.

            I kinda thought it was funny when I signed up. It was like a very formal bathroom pass.
            \

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            • #7
              I started attending school last summer and last fall was one of the worst flares I've ever had. OK - it was the worst. And then this semester I'm at a four year college (I'm 39 and a returning student) and week two, had a flare. I went to Disabled Student Services and they are helping me get lenience with my professors for attendance as well as giving me extra time in a low-distraction environment for taking tests, so I can get up and move around.

              They did ask for a letter from my doctor saying I have a medical condition, the name (Interstitial Cystitis) and the diagnostic code. My doctor, whose husband is a university professor, told me that this would not get me out of any assignments or responsibilities, but that the point was that it would help get me some tools to deal with going to school.

              Maybe if you make an appointment and talk to DSS on campus and then go to your doctor and make a specific request for a letter saying you are being treated for a chronic pain condition that may necessitate your taking a day or two here and there, then your doctor will be ok with it. My doctor made a point of saying she wasn't going to make any comments about *how* I do my work, just that I have a condition and that she is happy to talk with DSS about anything they need, information-wise, about my condition.

              It might just be your doctor doesn't want to be the one to give you a blank check. And DSS wouldn't let that happen, either. They just want to help it make it possible for you to get an education, even with what they consider a disability.

              I'd give it a shot. It's already a huge relief to me to know I will be able to have some understanding from my professors (one has even told me that if I let her know ahead of time I'll be absent that she'll give me credit for being there as long as I turn things in, which is amazingly cool).

              Good luck and take care -
              Stephanie
              GutThinking.com

              Dx's
              2011 - Adenomyosis (172g uterus), Ovarian Cysts
              2007 - Endometriosis, Interstitial Cystitis
              2004 - celiac disease/autoimmune gluten intolerance
              2004 - migraines
              1999 - Nightshade intolerance
              Sciatica, thoracic and cervical disk problems
              Separated shoulder (a/c joint)
              Positive ANA since 1990

              Treatments

              6/30/2011 - total hysterectomy (vaginal, lap assisted)
              9/15/2010 - first instill (heparin, lidocaine, sodium bicarbonate) - adding Elmiron for the rest of the series (still doing this, 2 the week before my period)
              11/2010 - Uterine ablation with hopes it would calm down abdominal activity - didn't work

              Meds
              Desert Harvest aloe vera
              valium
              vicodin
              Vivelle Dot .1
              ibuprofen
              Imitrex
              Singulair

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              • #8
                Hi,

                I am currently a senior in college and have had IC since week 2 of my freshman year. The way that I have handled it thus far is to approach my professors at the beginning of the semester and explain my disease. I tell them that I need access to the bathroom at all times and that I may occasionally miss class due to big pain flares. Then if I do end up missing class (which for me happens from 2-4 times a semester per class) I send an email that morning or if I know the evening before. This method has worked for me 90% of the time and all my professors have been really helpful. I have even had to get an occasional extension on a paper because my pain has made it impossible to work. Just be upfront and honest (even though it can be embarassing).

                In the other 10% of the time the professor asks for a doctor's note ahead of time because my doctor is in a different state and I am DEFINITELY not going into the clinic (which is 0 help) and I treat the pain/symptoms myself. The note my doctor gave me says something along the lines of:
                I am treating Ms. So and so for a urological condition, she requires free access to the bathroom at all times and due to intermittent pain flares may miss class, these absences should be considered medically excused.

                This has worked well for me thus far but I have also heard the disibilities office is really helpful.

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