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  • tips for traveling with IC?

    I wasn't sure where to put this post, but as I am a college student, I figured this is as good a place as any.
    In just over a week I am traveling to Europe, I'm really looking forward to it, but I am NOT looking forward to the transatlantic flight.
    Does anyone have any tips for how to cope with being on a plane for almost 10 hours?
    I'm already planning to have my IC cushion to sit on, and some AZO on hand in case of an emergency. I'm just a bit worried about having to go to the bathroom when you aren't allowed to move around and such. And I don't want this experience to make me flare as I have been doing pretty well, being mostly flare free for about 6 months.
    I would really appreciate any tips or suggestions.
    Thank you!
    my IC blog: http://www.icetmoi.blogspot.com

    Developed IC 5/09
    Diagnosed w/ IC, vulvodynia, myofascial pain 1/10

    Current medications:
    Elmiron (200mg/day)
    Lyrica (50mg/day)
    IC diet (loosely followed)


    tried:
    Elavil (gained weight, was zombie like), and Tizanidine (saw no improvement), Gabapentin/Neurontin, Yeast-free diet, pelvic floor therapy (increased symptoms)

  • #2
    A note from your doctor about your need for restroom access could be helpful. I suggest you let the flight attendant know at the beginning of your flight. You'll want to have some IC friendly snacks with you.

    Most important --- have a wonderful trip!

    Hugs,
    Donna
    Stay safe


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    • #3
      Here's a link to a thread I started on overseas travel a few years ago. I hope you'll find something helpful in it And most of all, enjoy your trip!
      http://www.ic-network.com/forum/show...ghlight=travel
      Kadi

      -------------------------------------------------------------
      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      ------------------------------------------------------


      New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
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      "


      Current treatments:
      -IC diet
      -Elavil 50mg at night
      -Continuous use birth control pills (4-5 periods/year)
      -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
      -Pyridium if needed,
      -Pain medicine at bedtime daily, as needed during the day several times per week
      -Antibiotic when doing an instillation to prevent UTI
      -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
      -Dye Free Benadryl 50 mg at bedtime
      -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
      -Managing stress= VERY important!
      -Fur therapy: Hugging the cat!

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      • #4
        Thanks for the tips!
        Kadi - I read through your thread about traveling and it definitely helped give me an idea. Luckily my IC is pretty mild, and I've been flare free for a while now, so I should be fine. I just wanted to make sure I have everything that I could possibly need.

        Thank you again!
        my IC blog: http://www.icetmoi.blogspot.com

        Developed IC 5/09
        Diagnosed w/ IC, vulvodynia, myofascial pain 1/10

        Current medications:
        Elmiron (200mg/day)
        Lyrica (50mg/day)
        IC diet (loosely followed)


        tried:
        Elavil (gained weight, was zombie like), and Tizanidine (saw no improvement), Gabapentin/Neurontin, Yeast-free diet, pelvic floor therapy (increased symptoms)

        Comment


        • #5
          One thing I also try to do is rest well the day before and make sure I have a day to crash when I get there if I need to. I used to pack at the last minute.....leaving only a few hours of sleep....THINKING I would sleep on the plane......my husband can sleep anywhere, but I just doze..not enough to give me good rest.

          Be sure to get up and walk every couple of hours also. I have been known to hog the bathroom and sort of jog in place just to get the blood moving.....

          I also ditto Donna.....have a GREAT time!!!
          Julie Beyer, MA, RDN
          IC Dietitian, Patient Advocate, Speaker, & Author


          Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

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          For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
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          IC Diet Newsletter


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          • #6
            Thanks Julie, I'm hoping I'll be able to sleep on the long flight as it's an overnight one, and I'll be taking my pills which should help with sleep.
            my IC blog: http://www.icetmoi.blogspot.com

            Developed IC 5/09
            Diagnosed w/ IC, vulvodynia, myofascial pain 1/10

            Current medications:
            Elmiron (200mg/day)
            Lyrica (50mg/day)
            IC diet (loosely followed)


            tried:
            Elavil (gained weight, was zombie like), and Tizanidine (saw no improvement), Gabapentin/Neurontin, Yeast-free diet, pelvic floor therapy (increased symptoms)

            Comment

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