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confused with career choices due to IC

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  • Nancy1980
    replied
    Re: confused with career choices due to IC

    Daisy what happend w u... Was it ic or pfd??? Did physical therapy help u??? Please help

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  • Daisy1211
    replied
    Thats interesting you said that, I am interested in art therapy. I actually wanted to do something like psychology because I love helping people... but it seemed confusing/difficult to get a job with. Your career seems so interesting!

    Now I really want to meet with my college advisor to figure this out Im getting awfully confused with what I want!
    Minoring in art therapy might be a great idea.
    Thanks!

    **update: getting treated for pelvic floor dysfunction. finally starting to figure things out!

    Leave a comment:


  • CherylSLP
    replied
    You may be ok as an art teacher. I might recommend looking into art therapy as well. I work in the schools, and am a speech language pathologist (therapist) working as an Assistive Technology Specialist. I won't get into details about the latter. I think it would be very very hard to be a classroom teacher for younger kids because they need to always be supervised, although some ICers just pop their head in to the next classroom to get someone to check kids if needed. Working with older kids, as long as your boss knew, you could just take 5 to go between every class or every two classes. Doable as an art teacher I would think. I would not be comfortable myself as a teacher because of IC, but as I said, some are. Being a therapists however, is great with IC. Half hour with kids then break with no problems. Sometimes longer meetings but my principles ( I work in a lot of schools) know why I sometimes pop out. Doing what I do as a consultant is even easier than therapy as I have more control over my time.

    A big recommendation. When looking for a job, your boss is very very important. Remember, you are shopping for a good fit in a job as much as they are shopping for you. Principles of schools, like any other boss, can be very different from each other. You want one who is easy to talk to, flexible and open. If you do not want to mention your IC, what you could do in an interview is ask about how the principle envisions you working with any special needs students at their school. That should give you some sense of how they work with disabilities. A school system known to be strong in working iwth kids with special needs may be a good option too.

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  • Daisy1211
    replied
    Thank you! haha yeah, my boyfriend reacts like that sometimes because of the frequency but hes starting to get used to it now. Sometimes its barely a minute apart (mainly right before bed).

    I definitely need to start trying treatments out and finding what will work.

    Im actually on vacation right now, and I was following the diet pretty good for about a week... until yesterday I caved in. I cheated for every single meal... its so tempting when Im out of the country and theres so much different stuff to try. BUT, I was shocked... I didnt get a flare yet, well maybe just a real minor one, I woke up to pee, and I felt burning for a hour or two after, but it was only a 4/10 pain, which was worth the food to me. I cant figure myself out with the food... I cant tell if it effects me or not!! I never know the cause to my flares.

    Thank you for the encouragement, I wont let it change my plans

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  • Jinny Jean
    replied
    I had the same fears when I finished my social work degree this past June. I started having trouble with my bladder in Dec of last year, right in the LAST semester of my degree! I was convinced I would not pass and all my hard work would be for nothing..... Thank GOD for my teachers!!! I managed to pass, and walk across the stage with all my classmates that I had been with for four years. What a wonderful day! I managed to do it with IC.

    I had SUCH A ROUGH time trust me (and I still do sometimes) but the more that I carry on and find ways to treat flares, rest, make IC friendly meals and take Elmiron, the better I feel. I only started with this IC thing not to long ago, so I do understand that it can be utterly dream crashing.. or seem like it is at the time.... but I can tell you from being a newbie (but having a bit of experience) that it does get better the more you figure out what works. I never thought I would be one of those that could write to someone else struggling, but here I am

    I have also NOT been officially diagnosed, but just diagnosed on symptoms, as just like you I have every symptom other than pain. The hydro isnt NEEDED to diagnose anymore. The cytoscopy is still good though and I did have one of those to rule out cancer etc.

    Now I can work full time and for the most part do not really pay my bladder any attention. In fact, physical activity seems to help! I even thought about taking up jogging! lol

    I can have pain free sex (which didnt happen when I was first struggling let me tell you!) lol

    and I can sleep through the night (only getting up once to pee)

    I am still diet sensitive so it will always be a trial and error thing with some foods, but I have narrowed down some of my favorites including french vanilla ice cream with pears and whip cream on top! HEAVEN hahaha.

    I realized that (for the most part unless I am flaring) that if you dont make your IC a big deal then it wont BE a big deal I dont think of it as a disease AT ALL. I think of it as a condition like hayfever, something you have that waxes and wanes, that you figure out how to live your life with.

    Now when I tell my boyfriend I have to pee, he doesnt even bat an eye lash, and just stops wherever, where as before he was always like "you just went!" or "again?" hahaha. He also realized that this is something that is just "there" now..

    For example, we went out on a boat yesterday afternoon, just the two of us as he had to do some work at a clients cabin on the lake. I had to pee three times, which meant he had to stop in the middle of the lake so I could pee... (yesterday was an "iffy"day a I call it). Well I managed to hang my ass off the side of the boat and pee.. lol, the whole time we just carried on the same conversation as we were before I yanked down my pants....ignoring the "bladder fits" lol. The less you make a big deal of it the less it will affect life.


    Hang in there and DO NOT give up teaching! You will be fine

    Jenn
    Last edited by Jinny Jean; 07-21-2011, 07:38 PM.

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  • Daisy1211
    replied
    Thank you !!!

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  • skybluesoul
    replied
    I just wanted to give you some hope also. Though I had to take some time off of work about 2 years ago (mostly for pelvic floor dysfunction, my IC hadn't been officially diagnosed then), I'm doing much better now. I didn't have to take any time off this past school year. I know I could pursue accommodations for my illnesses, but fortunately haven't had to do so yet. I'm lucky enough to have a bathroom near my classroom, so I can run out in between classes to go if I need to. So far this hasn't been a problem. If you want to teach, go for it! When you get to student teach, that should be a helpful way to gauge how much difficulty you'll have in the classroom as far as IC. In the meantime, get the treatment you need, as Kadi suggested.

    Leave a comment:


  • Daisy1211
    replied
    Ok thank you so much. I learned so much on this site, I never would have known any of this... Im definitely going to look into accommodations at college as well... just in case.
    Your right, the people who are doing good with their IC dont need to go on here... thanks for pointing that out, all the conversations were making me think ill only get worse! such a good way to think of it.

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  • kadi
    replied
    When you get ready to apply for jobs, read up on the Americans with Disabilities Act and check in here - there are lots of people with experience here in asking for workplace accommodations. But, you may not need much once your IC is treated

    One of my coworkers, a teacher's aide, has IC, and she found that once she got on the diet strictly and started Elavil, she hasn't needed anyone at work to even know she has IC. She's doing that well with just those 2 treatments!

    Just a note also that you will see some of the more severe cases of IC here, because patients who are doing well don't usually post - they're out living life!!

    Leave a comment:


  • Daisy1211
    replied
    Thank you soooo much! This is really good news =) Its great knowing that schools can accommodate your needs for this. I was worried that they just wouldn't hire me because of it... and you are right, I havnt even started real treatment... the appointments seem so far apart I just forgot I will eventually move forward. Two more weeks until I see a specialist! I got the doctor off this site so I have high hopes =)

    Donna, I will definitely keep the other options in mind for the future! Thats great she has her own business dealing with art, sounds fun (at least to me)!

    Thank you! <33

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  • kadi
    replied
    Hi Daisy,
    I have pretty severe IC (when I first was diagnosed I was voiding 60x a day, completely unable to sleep or function at any level) and I've been teaching through the 8 years I've had IC. Looking at your signature, you've barely scratched the surface of available IC treatments. The way you feel today is not going to be the way you will feel once your IC has a full treatment plan and you've been on it awhile. Hang in there, the worst part is just before & just after diagnosis, before you get the diet and treatments individualized for you.

    The other thing is that I have accommodations under the Americans With Disabilities Act (a classroom near a bathroom, restroom break once per hour, and an end-of-the-day prep period), which my school district must provide. Those accommodations make it possible for me to continue in my career which I love. The key factor is that I have to be able to teach (my intellect and love for children is not affected by my IC) and simply need "reasonable accommodations" to perform my job functions.

    I think you are way too early in your IC journey to be ruling anything out! My experience on these message boards for the last 8 years has shown me over & over again that the vast majority of IC patients regain a good quality of life once their treatment is stabilized. I'm an example of that myself

    Wishing you better days soon and encouraging you to keep going forward with your dreams,

    Leave a comment:


  • ICNDonna
    replied
    I have a step daughter who has a degree in art education. She and her husband, who also has an art degree, operate a business where they make and sell art objects --- and also frame paintings, etc., along with it. She also teaches privately.

    There are options with an art degree that don't involve classroom teaching. If it's what you love, I encourage you to go for it.

    Sending encouraging hugs,
    Donna

    Leave a comment:


  • Daisy1211
    started a topic confused with career choices due to IC

    confused with career choices due to IC

    Im currently going to college for art education... to become an art teacher. I am entering my third year of college, and now I have possible IC (I suffer from every symptom, waiting on the diagnoses). I have anxiety about this because... my life style has been much different with these pains, I cant imagine standing in front of a class for full days... without going to the bathroom every ten minute... or more. I hope Im not wasting my time getting this degree. =( I dont know what to do. Maybe its too soon to tell =/
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