Announcement

Collapse
No announcement yet.

"12 Miles for 12 Million with IC" Fundraiser Walk in Boston!

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • "12 Miles for 12 Million with IC" Fundraiser Walk in Boston!



    I thought this might be of interest to the many college students in the Boston area...

    September is IC awareness month, and since there's no official walkathon, I'm planning my own personal IC awareness walk and fundraiser in Boston called "12 Miles for 12 Million with IC". Please check it out and consider making a donation - or joining me on the walk if you live in the area! My urban hike happens on Saturday, October 1st . On behalf of the 12 million Americans estimated to have interstitial cystitis, I'll be walking 12 miles across Boston, decked in some great teal awareness costumery. I'll be stopping at several famous Beantown landmarks along the way to take some fun photos and post them to social media.

    If you're interested in joining the walk, just reply to this post and I can send you the details! Friends, family, significant others and doggies are welcome. Meanwhile, I encourage you all to share my online fundraiser with your social network, and I deeply appreciate any support you can give! Here's to a pain-free future for us all...
    Last edited by Tanguera; 09-18-2016, 07:17 AM.
    History : IC since 2000 (onset due to severe UTI). Diagnosed in 2009 via cysto-hydro (glomerulations, no Hunner's ulcers). Cysto-hydro caused Pelvic Floor Dysfunction, which remains chronic and causes painful intercourse.
    Helpful treatments : IC Diet, Gabapentin, Hydroxyzine, Cystoprotek, Ibuprofen, Elmiron, Acupuncture, Pelvic Floor PT (for PFD).
    Harmful treatments : Detrol (bladder anti-spasmodic, caused frequent need to void, general bladder pain), marshmallow root tea (caused stomach pain/gas)

  • #2
    Re: "12 Miles for 12 Million with IC" Fundraiser Walk in Boston!

    What a great idea! I hope you get lots of response.

    Huge hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Re: "12 Miles for 12 Million with IC" Fundraiser Walk in Boston!

      Originally posted by ICNDonna View Post
      What a great idea! I hope you get lots of response.

      Huge hugs,
      Donna
      Thank you so much for the kind words of support, Donna! I do hope to inspire more IC patients to action.
      History : IC since 2000 (onset due to severe UTI). Diagnosed in 2009 via cysto-hydro (glomerulations, no Hunner's ulcers). Cysto-hydro caused Pelvic Floor Dysfunction, which remains chronic and causes painful intercourse.
      Helpful treatments : IC Diet, Gabapentin, Hydroxyzine, Cystoprotek, Ibuprofen, Elmiron, Acupuncture, Pelvic Floor PT (for PFD).
      Harmful treatments : Detrol (bladder anti-spasmodic, caused frequent need to void, general bladder pain), marshmallow root tea (caused stomach pain/gas)

      Comment


      • #4
        Re: "12 Miles for 12 Million with IC" Fundraiser Walk in Boston!

        Originally posted by Tanguera View Post
        Thank you so much for the kind words of support, Donna! I do hope to inspire more IC patients to action.
        This is AWESOME!!! Well done...

        Jill
        Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality. http://www.icnsales.com/icn-personal-coaching/

        Looking for books, magazines & reports on IC? Please visit the ICN Shop at: http://www.icnsales.com: Your ICN subscription & purchases in our shop support these message boards, chats and special events. BECOME AN ICN ANGEL TODAY!

        Please remember that the information on the ICN is provided with the understanding that ICN, its founder, staff, volunteers, and participants are not engaged in rendering medical or professional medical services. We cannot and do not give medical advice. Only your personal physician can do this for you.






        Comment


        • #5
          Re: "12 Miles for 12 Million with IC" Fundraiser Walk in Boston!

          Great stuff.
          UTI 3/2015
          IC ,PFD
          prescribed meds: Endep 60mg, Elmiron 400mg, BC. Enablex 7.5mg.

          Supplements: Chitomur peptide, colostrum, Echinacea, liver detox swisse, calcium citrate, glucosamine, Psyllium Husk.

          Daily diet: Breakkie- oats with chia seeds and no fat milk. Post workout-turkey breast with mixed veggies. Lunch-raw green soup with rye roll and handful of peanuts/almonds. Dinner- changes but meat and veg. Dessert-banana and sugar free custard (homemade) or banana and apple bake with almonds cinnamon and honey with a dollop of coconut cream.


          Tried: tramadol, cystoprotek, multi right, diazepam, vesicare, Ditropan, mirabegron, Flomax, lyrica, progesterone.

          Comment


          • #6
            Re: "12 Miles for 12 Million with IC" Fundraiser Walk in Boston!

            Thanks so much for your support, everyone! Please do share my "12 Miles" page on Facebook to help get the word out. I'll post updates and photos on that page, so stay tuned!
            History : IC since 2000 (onset due to severe UTI). Diagnosed in 2009 via cysto-hydro (glomerulations, no Hunner's ulcers). Cysto-hydro caused Pelvic Floor Dysfunction, which remains chronic and causes painful intercourse.
            Helpful treatments : IC Diet, Gabapentin, Hydroxyzine, Cystoprotek, Ibuprofen, Elmiron, Acupuncture, Pelvic Floor PT (for PFD).
            Harmful treatments : Detrol (bladder anti-spasmodic, caused frequent need to void, general bladder pain), marshmallow root tea (caused stomach pain/gas)

            Comment


            • #7
              Re: "12 Miles for 12 Million with IC" Fundraiser Walk in Boston!




              12 Miles for 12 Million with IC is hitting the streets this weekend! My costume is ready, my course is mapped - I'm ready to walk 12 miles to raise funding and awareness for Interstitial Cystitis! If you're like me and want to take action for the IC cause, please visit my online fundraiser and donate, share the link with your network, or even join me on the walk if you live in Boston. This one's for you, IC warriors - click for details, and heartfelt thanks for your support: https://give.everydayhero.com/us/12m...2millionwithic
              History : IC since 2000 (onset due to severe UTI). Diagnosed in 2009 via cysto-hydro (glomerulations, no Hunner's ulcers). Cysto-hydro caused Pelvic Floor Dysfunction, which remains chronic and causes painful intercourse.
              Helpful treatments : IC Diet, Gabapentin, Hydroxyzine, Cystoprotek, Ibuprofen, Elmiron, Acupuncture, Pelvic Floor PT (for PFD).
              Harmful treatments : Detrol (bladder anti-spasmodic, caused frequent need to void, general bladder pain), marshmallow root tea (caused stomach pain/gas)

              Comment


              • #8
                Re: "12 Miles for 12 Million with IC" Fundraiser Walk in Boston!

                I can't believe i JUST saw this and missed it.
                I go to school in Boston and am struggling with IC.
                I wish I could have gone but hope you had a great turn out!!
                Please let me know if you plan to do anything like this soon!

                Comment

                Working...
                X