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hi everyone

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  • hi everyone

    I'm mimi and im a college student living with diagnosed IC.
    My experience with IC is pretty much just me crying on the toilet (at its worst) waiting to pee (its weird--- i get a weird relief when i pee) and general urethral pain at random times. I've had this for like 2 years and kept getting it diagnosed as utis. But I really hate IC. I have a flare up right now... probably from tight clothing which is annoying.

    I've become used to the horrible pain and its effects on my mental health. Luckily I study computer science so I dont have to move around a lot.

    medicines i use: azo, uricalm(better than azo in my opninon), d-mannose, marshmallow root, aloe gel.

    Lifestyle: i switched to only wearing 100% cotton undies and THIS HAS BEEN A GAME CHANGER! thought i had cured myself.. but it came back. remission? idk.

  • #2
    Re: hi everyone

    to the IC Network.

    There are several links in my signature below that I think will be helpful for you. I suggest you begin with the information on subtypes so you will have a clearer picture of what's going on with you. Have you started an IC diet? If not, I suggest you begin that today --- there's also a link in my signature to diet information.

    Sending healing thoughts,
    Stay safe

    Elmiron Eye Disease Information Center -
    Elmiron Eye Disease Fact Sheet (Downloadable) -

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help:


    Diet list:

    AUA Guidelines:

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool