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Newly diagnosed

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  • Newly diagnosed

    I am 16 and have fibromyalgia, chronic fatigue syndrome, irritable bowel syndrome, and was diagnosed today with interstitial cystitis after a cystoscopy and hydrodistension. If anyone is interested in talking, my e-mail is [email protected]


  • #2
    Hi Amanda. I am not a teen, I have three teens and I have had IC since I was 15 or 16. I did not get diagnosed until 1998 though. I want to welcome you and you may write to me at any time at [email protected]. I am the moderator of this board and I also correspond regularly with another teen who has been diagnosed with a similar syndrome, but not IC.

    Welcome to our little on-line world...Love Julie B
    Julie Beyer, MA, RDN
    IC Dietitian, Patient Advocate, Speaker, & Author

    Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

    Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

    You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

    ........ ........

    Other IC Diet Resources:

    IC Diet Webinar
    IC Diet Website
    For Health Professionals: Continuing Education About Interstitial Cystitis and Diet
    Free IC Diet Booklet: What Can I Eat?
    Confident Choices IC Diet Blog
    IC Diet Newsletter

    *Let's Connect!*


    • #3
      I have had IC since before high school, and I fully understand what high school is like with IC. If you ever need to talk, you can find me here......or at [email protected]

      I also have some stratiges to help you deal with your IC with minumial disruption to your if you want my ideas just ask. I am sorry that you have this, but you have come to the right place to find support. Lisa
      God is our refuge and strength, an ever present help in trouble. Therefore we will not fear, though the earth give way and the mountains fall into the heart of the sea, though its waters roar and foam and the mountains quake with their surging......The LORD Almighty is with us the GOD of Jacob is our fortress." Psalm 46:1-3,7

      May God bless our nation


      • #4
        I have IC and had it in High School. I am 23 now and I can relate to you. If you would like to chat I come on the ICN chat often just let me know and I will get on. My email is [email protected]

        Love and Big Hug


        • #5
          How did the hydro go? I have so much in common with you, I have had IC since I was 16 and in high shcool. I graduated in 99 and was forced to drop out of college this past year. my e-mail is [email protected]