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My Disease

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  • My Disease

    I am a 18 yr old girl and have recently been
    dignosed with IC, it's a experience. I not
    only get sick but hot and cold fevers lower
    stomach pains and unable to eat certain
    things is the hardest. I don't have a life
    anymore I feel it's draining me. I am suppose
    to be happy but all I feel is depressed. I
    even hate myself sometimes and start blaming
    myself. I feel alone because family doesn't
    understand. I pee constantly, I hate it!!

    email me: [email protected]


  • #2
    Being told you have IC is extremely devastating at any age, and I certainly understand how you are feeling right now. I'm glad you found the IC Network. You'll find a great deal of support from people of all ages who understand because all of us have IC.

    It can take time to find which treatments and medications work best for you, but most of us do ... and there is life with IC.

    Diet is extremely important and can be tough to follow at times. It can be a challenge, especially when eating away from home, but if you think of the trigger foods as allergies, it makes it much simpler and you don't have to do any other explaining.

    The Patient Handbook on this site has some excellent information which you can share with family to help them understand.

    Sending healing thoughts,

    P.S. I have a granddaughter your age.
    Stay safe

    Elmiron Eye Disease Information Center -
    Elmiron Eye Disease Fact Sheet (Downloadable) -

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help:


    Diet list:

    AUA Guidelines:

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Anyone who says something is foolproof hasn't met a determined fool