Teenagers with IC

[saltire]

Hi, My name is Lynn, my daughter is almost 13 and is suffering from what the doctors think is IC, i was wondering if there is anyone else on here that has teenage kids with it? I tried to read the thread about teenagers with it, but it's not letting me in.
Saltire

[Berkshire Road]

I'm sorry you still haven't found anyone. If there's an IC support group in your area, you might ask around there for any young people.

As I told you before, I know it's not the same, but my 12 year old is enthusiatically willing to correspond with her. She has been directly involved in my care, so she gets it as much as anyone w/o IC possibly can.

But I know there are kids with IC. I just wish I could help you find them. I'll ask my doc if he has any young patients, when I see him in May.

[Roxie2007]

HI Lynn, OMG I am so sorry that your daughter is experiencing symptoms of IC! Have you found a good IC dr. for her? That's SO important to get her on the right meds now before the symptoms progress. Starting her on the IC diet right away is a must too...staying away from all the trigger foods.......which must be SO hard for a 13 yr old!
Best of luck to you and your daughter.....it's not going to be an easy road....Roxie

[leelee88]

This would break my heart.. Knowing the pain I have it would be devastating to have to watch my child go through this...(((((((((((hugs)))))))

[ICNDonna]

We do have some teens who come regularly to the IC Network. Hopefully some of them will respond.

Warm hugs to both of you,
Donna

[humpieumpumkin]

My symptoms started abruptly at age 16, although I remeber pain in the kidney area and frequency since about age 11. Hope this helps.

Erika

[Kate01]

Hiya. My name's Kate. I've recently turned 16 after being diagnosed with IC. I'm more than happy to talk to your daughter so she knows she isn't the only one if you'd like being closer in age than most people on this site. This website has helped me so much with advice and friendly people who can relate to what everyone is going through. I didn't know what to do in the beginning. Best wishes x x x

[jessied]

Hi I am Jessie I am 16 and have had IC for 2yrs. I would be happy to speak with your daughter. Just email me anytime @ [email protected].

[tbn]

I am a teenager with IC and I am sure my mother post on here sometimes. I have s had symptoms of IC forever but I wasn't diagnosed until the summer before my 7th grade(...I am 15 now); I can seem to imagine how she feels. If you have any questions or want to talk, I would be glad to contact you. I am sorry you and your daughter have to go through this. I wish you the best of luck.

[dg2901]

Sending well wishes to your daughter! i cant imagine having to deal with all that comes with IC at such a young age.
Hopefully she'll get to a point very soon where her symptoms are managable.

Wishing her well...
Diana

[catlover2]

I'm 18 and I've had IC for less than a year. I've tried all of the treatments except CyA and removing my bladder. I am probably going to start CyA by the end of May. I can help you with questions about IC and school and treatment questions.

[beckestr]

I grew up all my life with IC, and wasn't diagnosed till I was 18, at the age of 13 thats pretty rough, and there is a good chance she'll have some problems with depression and anxiety, as that happend to me, as I just hated! having to pee every few min. Some days are better than others, Once in a while, I'll do great, and other days, I'll be in the bathroom for up to 1 hour or more, and keep having to pee over and over, while trying to get to my next class, which was like hell to me, the best to do, is get her diagnosed, and start treatment, the sooner the better, its very rough, for teens to have it. i missed out a lot in my life, like with going out to the mall with friends, the movies, and everything. so treatment, the sooner, is the best.

Best of luck,

Becky

[rjyoon]

My IC started about when I was 14. Of course, it wasn't diagnosed & treated for many years. Hopefully your daughter can find a treatment which will help. Resources are so much better today, so it's easier to be informed.