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IC made me miss my senior prom!
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:woohoo: Congradulations on graduating!!!! That's so exciting... are you going to college?? I'm sorry that you missed your prom. My senior prom was full of drama so I could have missed it but I know how upset you are about it. Sending you big hugs
Rach***Rachel***
Dance like no one is watching
Love like you've never been hurt
Live today like it's your last
Dxd with IC in June '06
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I'm so sorry you missed your prom.
Congratulations on completing high school!
Warm hugs,
DonnaStay safe
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Anyone who says something is foolproof hasn't met a determined foolComment
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Congrats!
Diana(\__/)
(o.O )
(> < ) This is Bunny. He's on his way to world domination.Comment
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oh man
that really sucks big time. i'm sorry. death to IC!!!!!Lee Ann
Current Rx Meds:
Atarax, Ditropan, Elmiron
Prior to pregnancy: The above 3 meds PLUS Neurontin, Topamax, Loratadine, continuous OrthoCyclen, Lidocaine Patches PRN, Temazepam PRN, & Vicodin PRN
Hooray for babies!
Misc. lifesavers: Hot baths, ThermaCare Heat Wraps, Ice Packs. The IC Diet has changed my life.
Didn't work for me:
Detrol LA, Amitryptiline, Morphine, Percocet, TENS unit, Interferential Pain Stimulator Unit, Hypogastric Plexus Nerve Block
IC (Mod-Severe) since 1996
UPDATE: 5/21/08 Pregnancy and breastfeeding afterwards have alleviated my IC symptoms more than anything, EVER. Most days are 100% pain free & I now have normal frequency (as long as I take these 3 meds).
My little sweetie! Jack weighed 9 lbs 12 oz and was born via c-section on Feb. 28, 2008...
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That does really suck that you missed your prom but you graduated from high school which is a really big deal. You should be very proud of yourselfChristine
I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
I have tried every oral medication as well as rescue instills and DMSO.
I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)
Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
Also proud mom to the best Bullmastiff on earth, Claus
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That's awesome that you graduated! Are you planning on going on to college?current meds:
cytotec 200mcg twice daily
toprol
allegra
ONLY 3 MEDICATIONS!!! YAY! Would never have dreamed this is possible
dx: hashimoto's thyroiditis 1998
dx: interstitial cystitis via cystoscopy with hydrodistention and biopsy 2003
dx: endometriosis 2003
dx: innapropriate sinus tacchicardia 2005
meds tried but failed:
elavil (6months)- severe tachycardia
elmiron (1yr6mo.)- no improvement, nausea, hair loss, stomach ulcers
a bunch of others
Me and my best friend's baby (also my Godson!)Comment
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Hey, you're right around my age then, aren't you? Cool
I just graduated on Sunday. Here's me in my cap and gown:
Actually, I'm not gonna lie, it's my friend's cap and gown from last year. She's in college now, and I was too cheap to buy my own, so I used hers. She went to the same school I did, so it's the exact same one that everyone has this year anyway. It was just slightly long on me, since she's taller and all. But our school makes us girls wear these funky yellow caps and gowns anyway.
Sorry you missed prom, but, you know what? I went to prom, and I thought it was overrated. I actually came here and made a post here about it.
I think I might've had a better time if me and my friends had just gotten together and hung out. I think what happened was that I expected it to all turn into a big Disney movie, with me as Cinderella, and my now-ex boyfriend as Prince Charming. I expected the whole thing to be this huge ball, when it was really just another dance.Well, I just got back from my senior prom. And I can't help but think it was completely overrated. I had been counting down for a month, I bought an expensive dress, had my hair done, my makeup done, and I went expecting to have a magical night. My date got a really nice tux, and we got each other the corsage and boutonniere. But when I went, it was just... a dance. Just like every homecoming and turnabout for the last four years. There was nothing magical or romantic. I kept thinking, is this all there is to it?
Halfway through, I could tell some of my friends were disappointed too, so we all went to this one chick's house and had our own little party there
I know this probably doesn't help much right now, but I thought prom wasn't all it was cracked up to be.
But anyway, if you ever wanna talk about this IC stuff with someone your age, I'll be here on the boards. Let me know if you'd like my e-mail address, I'm not that good with keeping up with private messages. But my point is that I know how it feels to be young and have IC; I've had it since I was 15.
You are not alone
Chronic conditions: IC, bipolar disorder, Lown-Ganong-Levine syndrome, Raynaud's disease, bile reflux, scoliosis
Current IC treatments: menstrual suppression
Daily treatments for other conditions: Neurontin, Zyprexa, Cymbalta, Modafinil
As-needed treatments for other conditions: Klonopin, Ambien
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Congrats to you too, GTF!
Diana(\__/)
(o.O )
(> < ) This is Bunny. He's on his way to world domination.Comment
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Congrats on graduation!!! I am sorry you missed your prom. I hear that it is not the exciting though (if that makes you feel any better) but I wouldn't know because I am only a freshman. I think some else posted a thread saying that she wasn't that impressed by prom.
IC AwarenessComment
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Congrats on Graduating! I can't imagine how hard it must be to be a student with IC. My symptoms started right after I graduated from college. I don't think I could be in school right now the way I feel!
I am so sorry you missed your prom. I didn't graduate from high school (got my GED instead) and so I missed my prom too. Most of my friends said it was over-rated and VERY overpriced! Two years later I got to be a brides maid in my friend's wedding and that was like a prom to me: getting dressed up, being with friends, dancing all night! I hope you will be able to have your own special night some day soon!Rachel
DX's:
IC; PFD; possible Fibromyalgia; IBS;
Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain
I've Tried:
three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
Currently using:
Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!
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CONGRATS on graduating and I'm sorry about your prom! I graduated about two years ago and IC completely ruined highschool for me. I used to be a great Cross Country runner and I worked my butt off to be as good as i was IC made me miss my state meet and with it i missed my chances of getting a scholarship. I know just how it feels to basically lose all control of your life. I can't run anymore casue it causes pretty bad flare ups, but despite evrything its not the end of the world. It took me a long time to come to terms with everything, but you cant let it take over your life. good luckComment
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