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  • Any Teens out there?

    Hey, my name is Kiersten and I am 17. I'll be starting my senior year this upcoming school year. I am a little nervous about having to go back to school with this...I mean, how am I going to explain to teachers why I have to leave the room for a restroom break almost everyday. You know how they are. They always think you are running off or making calls.

    What are some other problems you've encountered as a teen with IC? Any tips for dealing with it?
    Current IC medication:
    Diagnosed July 15th, 2010
    Taking: Elmiron 100MG, 3 times a day
    Prosed DS, 4 times a day (Depending on my pain level)
    Strict IC Diet

    Other Medication:
    Implanon(Type of Birth Control)
    Melatonin, 1 time a day(To help me sleep)


    I have a blog now! Its all about IC. Check it out if you want! http://thelovelykiraldr.blogspot.com/

  • #2
    Hola!

    I love your icon btw, Harry Potter is pretty much my life

    I'm also going to be a senior in HS, and I've had IC since November of my sophomore year. What I do, and would recommend, is that you get a doctors note from your Urologist, and give it to your nurse and have her write out a special nurses pass that you just flash to your teachers whenever you need to go. They won't ask questions, or at least shouldn't, and it's nobody's buissness why you go to the bathroom so much. I have IC and IBS, so I use it for both, and I just tell people so they know, but you don't have to do that.

    Other problems I've had is that my friends don't seem to understand the pain that we go through ever day, and that it's so extreme sometimes that we can't get out of bed, or move without being in agony.

    If you want to add me on facebook, I'd be glad to talk to you on there, too

    Gina Marie.
    Diagnosed;
    IC; Early November 2008, age 15 by hydro/cysto
    IBS; May 2010

    Current Treatments;
    Elmiron - 2 pills twice a day, started on 8/11/09.
    Cystoprotek - when I remember, not usual.


    she's seventeen and a beauty queen <3

    Comment


    • #3
      Yes, Harry Potter is <3 I adore it xD

      I figured I could just get a note and hopefully flash it to whoever asks without them getting in my business. I guess if I had to explain I would I would just not like to have to do that is all.

      The part with friends I understand definitely. Mine don't understand how bad it actually hurts and think its just a small thing >_< I have almost given up trying to explain it to them because they just won't listen very well.

      And I would love to add you on FB ^-^ You can PM me if you want to so we don't have to put them out in the open.
      Current IC medication:
      Diagnosed July 15th, 2010
      Taking: Elmiron 100MG, 3 times a day
      Prosed DS, 4 times a day (Depending on my pain level)
      Strict IC Diet

      Other Medication:
      Implanon(Type of Birth Control)
      Melatonin, 1 time a day(To help me sleep)


      I have a blog now! Its all about IC. Check it out if you want! http://thelovelykiraldr.blogspot.com/

      Comment


      • #4
        Hi Kiersten,

        I'm not a teen with IC, but I am a high school teacher with IC I really recommend you get the urologist's letter & then give it to the nurse, if your school has one. There are no nurses where I work, so if that's the case for you, you could give it to your counselor or assistant principal and have them notify your teachers you should have immediate access to the restroom pass. I don't recommend holding the letter back, then "flashing" it at the teacher right when you need to leave the room because when we're teaching we have to keep 37 people's attention, won't have time to read it, or give a thoughtful answer.

        If you notify the teachers in advance, you should avoid a conflict over it, because they'll be prepared to treat you differently. (And in this case, it's very ok to be treated differently, but discreetly.) You're right that most teachers are uncomfortable with passes. My administration wants teachers to restrict passes to the absolute minimum. We actually get written up if we write too many bathroom passes, so we have to be pretty hard-nosed about it, though I always tell students that if they have a medical concern with needing restroom access often to have their parents write me a note & we'll then set up a signal for them to leave quietly.

        And yes, it's mainly due to students wandering the campus chatting on cellphones, but in my school, also due to bathroom grafitti, sexual encounters between students in the bathrooms (so romantic-- NOT!), assaults, alcohol & drug use in the restrooms. Unfortunately, those problems make it hard for us to write passes as freely as we would like. (I wish I could write myself a pass to use the restroom during class!)

        One thought about high school & IC, is that very few cafeteria choices for lunches are IC friendly. So, I recommend getting some IC friendly portable snacks to carry in your bag - I like little bags of almonds, raisins & white chocolate chips, Lays classic potato chips, Coconut Cream Pie Lara Bars, Cascadian Farms vanilla chip granola bars, pear bars from the ICN shop, bottled water. And also packing a healthy IC friendly lunch to take with you is a good idea. A lot of my students don't eat lunch at school & then are really tired & cranky the last periods of the day - I wish I could convince them that lunch matters!

        Wishing you an excellent senior year filled with great memories,
        Kadi

        -------------------------------------------------------------
        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        ------------------------------------------------------


        New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
        Source - Pinterest
        "


        Current treatments:
        -IC diet
        -Elavil 50mg at night
        -Continuous use birth control pills (4-5 periods/year)
        -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
        -Pyridium if needed,
        -Pain medicine at bedtime daily, as needed during the day several times per week
        -Antibiotic when doing an instillation to prevent UTI
        -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
        -Dye Free Benadryl 50 mg at bedtime
        -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
        -Managing stress= VERY important!
        -Fur therapy: Hugging the cat!

        Comment


        • #5
          Oh thank you for responding =D I definitely understand the part about not being able to write passes. My old school was just as bad as that so giving out passes was very limited. We had 9 passes for the whole 9 week period. I do have a nurse at the school I will going to so I think I could hand it to her and hopefully that would help. Or maybe at the beginning of the year after class talk to each of my teachers and show them the note.

          And yeah, i figured I would have to bring some sort of lunch because all there ever is in school is greasy or gross stuff :/ I actually used to not eat lunch at all at school because it would make me feel so sick but that ended up in me being tired and occupied with the feeling of being hungry.

          Thanks for the advice ^_^
          Current IC medication:
          Diagnosed July 15th, 2010
          Taking: Elmiron 100MG, 3 times a day
          Prosed DS, 4 times a day (Depending on my pain level)
          Strict IC Diet

          Other Medication:
          Implanon(Type of Birth Control)
          Melatonin, 1 time a day(To help me sleep)


          I have a blog now! Its all about IC. Check it out if you want! http://thelovelykiraldr.blogspot.com/

          Comment


          • #6
            Sorry I havn't gotten back to you quickly, I've been really busy with work.

            I agree with Kadi about the lunches. I usually eat an everything bagel with cream cheese or lunch everday, and steal my friends tater tots or french fries :P

            As long as you are straight-foward with your teacher about your IC and your specific needs, you should be okay.

            When were you diagnosed?

            I hope everything goes good for you (:
            Diagnosed;
            IC; Early November 2008, age 15 by hydro/cysto
            IBS; May 2010

            Current Treatments;
            Elmiron - 2 pills twice a day, started on 8/11/09.
            Cystoprotek - when I remember, not usual.


            she's seventeen and a beauty queen <3

            Comment


            • #7
              I was diagnosed about 3 weeks ago. And I think that maybe if I do just explain a little and show a note they will listen to me.
              Current IC medication:
              Diagnosed July 15th, 2010
              Taking: Elmiron 100MG, 3 times a day
              Prosed DS, 4 times a day (Depending on my pain level)
              Strict IC Diet

              Other Medication:
              Implanon(Type of Birth Control)
              Melatonin, 1 time a day(To help me sleep)


              I have a blog now! Its all about IC. Check it out if you want! http://thelovelykiraldr.blogspot.com/

              Comment


              • #8
                Originally posted by kadi View Post
                And yes, it's mainly due to students wandering the campus chatting on cellphones, but in my school, also due to bathroom grafitti, sexual encounters between students in the bathrooms (so romantic-- NOT!), assaults, alcohol & drug use in the restrooms.
                Jeez, either I am very sheltered, or that sounds like a rough school. Shame how so many kids fall onto the wrong path like that...

                Comment


                • #9
                  Yayy! Finally! People like me. I was diagnosed with IC Dec of 2009 and have been fighting it since I was about 8. Only RECENTLY have they sent me to a specialist for my condition, and now i'm taking Elmiron 3x daily and I take Zyrtec. Hopfully they'll be getting me set up soon with instills at home! OH! And lots of lidocane, I dunno what i'd do without it.

                  Starting school Monday sounds like a drag, but it's senior year! WOOT!

                  email me whenever you need someone to talk to about your flares, i'd love to talk! I check my email all day long, so I promise i'll respond. [email protected]

                  Take care!
                  Best of luck this next school year!

                  Stacy

                  Comment

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