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What can I drink?

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  • What can I drink?

    Has anyone found any drink besides water-[its hard to drink ice water when my family and friends are drinking sodas and floats] Im kind of afraid to try the water packets in my water bottles because they may have artificial sweeteners that can irritate the bladder. I did see some beverage recipes but I really don't have a lot of time or patience when im in pain to make something.Im also a little worried about trying Gatorade or Kid drinks like Capri-sun or Sunny D
    What do you guys drink?

    Im finally 17!!!:woohoo:
    Effexor -50 mg
    Cipro -500 mg
    Elmiron -100 mg
    Tramadol -50 mg
    Vicodin-500 mg
    Zofran -8 mg
    Pepcid -20 mg
    Omeprazole -40 mg
    Prelief/IC diet
    Ditropan -5 mg
    Birth Control pills for Ovarian Cysts

    First Cysto/Hydro W/ DSMO 1-28-2011

    Yay!!!! Im finally 17 :woohoo:

  • #2
    I like the blackberry Hint water. I get it either from the ICN shop linked at the top of the page or Whole Foods. Since they're a little expensive, I just put a little bit into my plain ice water - it makes it last longer, but still tastes good.

    Vanilla bean frappucinos (no coffee!) at Starbucks are good.

    I've also made hot or iced peppermint tea from teabags that are 100% peppermint.

    Trader Joe's blueberry juice is good also - I dilute it with water & ice. It's especially good if you put it in the blender with crushed ice -- kind of an icee type thing.

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest

    Current treatments:
    -IC diet
    -Elavil 50mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic when doing an instillation to prevent UTI
    -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!


    • #3
      I can drink peppermint herbal tea or chamomile tea. Also milk. I can drink a little bit of A&W rootbear with a prelief. Also, if you live near a Trader Joe's, I can drink the blueberry juice, as Kadi mentioned. A lot of people can drink baby pear juice (less ascorbic acid). I haven't tried it yet. I can also drink the vanilla or pumpkin steamers at Starbucks (they have no coffee in them). Also, Tyler's Acid Free, Decaf coffee, as found in the ICN shop. Vanilla milkshakes (if made with real dairy - I think Wendy's has real dairy, but I'm not sure).
      Update! Feeling much better these days and no longer on any meds!

      Pelvic pain began July 2008. Urinary frequency began in November of 2008. IC Doctor says I'm one of the worst frequency patients he has had.

      Things that helped me the most: IC Diet, Elavil (30mg), Elmiron since June '09 (500mg/day).

      Previously tried and quit: one series of six instillations, Neurontin, Ditropan, Oxytrol, electric stimulation to the pelvic floor, Desert Harvest Aloe, Cystoprotek and Flomax, Hydroxyzine (50mg), Alesse Birth control (this helped my period flares when my symptoms used to be bad), PTNS (I think this helped).