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Uro that doesnt believe in Pelvic Floor Dysfunction

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  • Uro that doesnt believe in Pelvic Floor Dysfunction

    Ive posted Threads before about my Urologist and how he frustrates me but recently I just cant get over how he doesn't really believe in problems with the pelvic floor. I rarely get a flare from something I eat instead Ill sometimes end up throwing up whatever it is. I cannot find a comfortable sleeping position some nights and I hate having to go anywhere because of having to sit in the car. For many years I remember the feeling of having something "in" me and now it only is starting to feel worse.

    Does it sound to you like an issue with my Pelvic Floor? Or is it all really in my head? Also I know that it really sounds like I need a new doctor but until my family gets some type of better insurance its kind of out of the question.
    Effexor -50 mg
    Cipro -500 mg
    Elmiron -100 mg
    Tramadol -50 mg
    Vicodin-500 mg
    Zofran -8 mg
    Pepcid -20 mg
    Omeprazole -40 mg
    Prelief/IC diet
    Ditropan -5 mg
    Birth Control pills for Ovarian Cysts



    First Cysto/Hydro W/ DSMO 1-28-2011


    Yay!!!! Im finally 17 :woohoo:

  • #2
    Hi there,

    Do you have a gynecologist that you can ask about this? It seems like a gynecologist should also be able to diagnose pelvic floor dysfunction. Just a thought!
    Julie Beyer, MA, RDN
    IC Dietitian, Patient Advocate, Speaker, & Author


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    • #3
      Urologists arent going to be much help in regards to a womans pelvic floor and possible problems. Try to get an appt with either a GYN or a UROGYN.
      Last edited by dg2901; 01-14-2011, 05:49 PM. Reason: spelling
      (\__/)
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      (> < ) This is Bunny. He's on his way to world domination.

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      • #4
        Hi. It does sound like you have PFD. I am fortunate to live close enough to see Dr. Moldwin, he's about a 90 min drive. Before him I saw a more local urologist who did not recognize PFD even though I brought the ICA newsletter to him to show him their article about PFD and physical therapy. He still said he wasn't "convinced" about it. 6 months later, pretty much bed ridden and told by this urologist he had "no idea what else to do with me." I took a chance and saw Dr. Moldwin. Turned out that my PFD was far worse than my IC. Food barely has any affect on my IC either and I tried the IC diet to be sure. I've tried everything over the years. Anyway, one thing Dr. Moldwin had me do which he said was crucial was to take two 15 min, warm baths per day, so I'm very glad to see you're doing that. He also prescribed Valium as a muscle relaxer and sent me for physical therapy. I was 50% better within 2 weeks of him treating me. Now, unfortunately I have Vulvodynia, so I can't take baths or have physical therapy as I used to because it burns, so I use an ice pack on my vaginal area for the burning which helps better than any pain med I've tried. I use heat on my lower back which helps also since your pelvic floor muscles extend up to your lower back. I also don't have insurance to cover Dr. Moldwin, but I only need to see him once a year and he is worth the out of pocket for that one visit. I'm not sure where you are in CA, but I know there a couple Uros who specialize in IC out there. I would seek them out because seeing a good uro once is much better than seeing a uro regularly who won't help you or give you the proper care. In fact, they can make it worse as I found out the hard way. My best suggestion is to educate yourself about this disease as much as you can. Go to the ICA website and check their directory of physicians. Join if you're able because they do send alot of helpful info. I would also buy Dr. Moldwin's book. I find it a great help to me. This website and people in the forums have been a great help. I would not have found out about Dr. Moldwin if it weren't for the people here.

        I hope this info helps. My best to you. Deb
        Last edited by dbdab; 01-15-2011, 03:53 AM.

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        • #5
          In regards to the vomiting, I did also experience this because I developed gastrointestinal problems that were found to be related to my IC and PFD. I was given Nexium and that helped with the vomiting. I couldn't even stick a toothbrush in my mouth without vomiting, so if this sounds like what you're experiencing it could be something to do with your esophagus. I'm not a doctor either obviously, so discuss all of your symptoms with a doctor. If you have a more supportive Gyno, then I agree with the others I would start there as well. This disease causes so many other things to develop that it becomes so complex to navigate, even for doctors which is why I say educate yourself and don't be afraid to express what you learn to doctors. Many in the medical community need to be educated on this disease. The lack of awareness is astonishing, so my feeling is I'm gonna share what I've learned with everyone I come across in the medical community and if I educate even one, that's one more person who's aware.

          Comment


          • #6
            pelvic floor

            Your uro sounds like a creep and its a shame you have him for your uro. take the advice of the others and see if a gyno doc can help you wishing you well.
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            • #7
              Thank you for all the replies I will try and talk to my mom about seeing gynecologist. As for the vomiting im also waiting to see a Gastro because my gallbladder is fine and I dont have any kidney stones right now and when I had to go to the ER they told me I had Gastritis?? I do have a lot of frequency and also have a lot of constipation and pain after bowel movements(sorry I forgot to mention that) I just am never comfortable it bothers me to wear jeans I have more pajama bottoms than regular jeans I also hate sitting in the car thats the worst..
              Effexor -50 mg
              Cipro -500 mg
              Elmiron -100 mg
              Tramadol -50 mg
              Vicodin-500 mg
              Zofran -8 mg
              Pepcid -20 mg
              Omeprazole -40 mg
              Prelief/IC diet
              Ditropan -5 mg
              Birth Control pills for Ovarian Cysts



              First Cysto/Hydro W/ DSMO 1-28-2011


              Yay!!!! Im finally 17 :woohoo:

              Comment


              • #8
                I had alot of trouble with pain while riding in the car before I had physical therapy(PT) for the pelvic floor. Any urologist treating IC should know about & "believe in" pelvic floor disorder. Maybe it's time to get a new urologist. Doctors forget that they work for us. We "hire" them & "pay" them. Find a urologist who respects you & is knowledgeable about IC.

                Comment


                • #9
                  Will your insurance at least cover a consult with a PT? If so do your research and call around to find one who knows IC and PFD. A simple biofeedback test may be able to tell. Just make sure you find a PT who knows IC. Never heard of nausea, but could be your meds, or just genuine stress and/or anxiety. Panic attacks and anxiety will make you nauseous. Take care of that, you don't need to be going through all of that on top of IC. Maybe a good internist can get to the root of the problem. Don't want to have an ulcer or anything with all the rest, and always having regurge will cause problems. Hope you feel better soon, please let everyone know what happens. Jill, wife of Bob

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