Help,Tons of blood in my urine

[too_young]

Every time I see my Uro I tell him about blood in my urine and every time he says (well im not concerned about that-that's normal with IC) The past few days ive been seeing more and more blood when I urinate and more and more stomach pain finally today before getting in the shower I saw so much blood and clots I freaked. I know its not my period because Ive already had one this month and it feels nothing like a period. What should I do when my Uro isnt listening and cant do a hydro/cysto until the middle of February. Is it really normal to have this much blood in our urine because I cant find any connection on this site about blood and IC.

[Briza]

HI
Are you absolutely certain the blood is coming from your urethra? One way to be certain is to insert a tampon. When you remove it if there is blood you will know for sure that is coming from the vagina and not the urethra.
Hope you get some answers soon.

[too_young]

Yes I am absolutely sure only when I urinate blood comes out I even put a tampon in to see if the blood would catch and it didn't. I know its not my period because I started on the 6th I have no idea where this blood is coming from only thing I can think of is from my bladder.

[Briza]

Is your mother aware of this? I hope she is taking an active role in your medical care. IC is a tough condition to manage at any age so it is probably best if your mother has input with your doctor regarding what is going on and anything your doctor is telling you regarding your medical conditions and treatment. Have your parents visited this board?

[too_young]

My parents are divorced I live with my Mom and visit my Dad, but he doesn't know about my IC. As for my Mom we have no relationship I respect her but we are like oil and water-I do tell her somethings but she really doesn't take me seriously so I deal with all my health problems on my own. When I tell her how I feel its like she blows me off and she thinks its all in my head kind of like my Uro.

[Briza]

I'm sorry to hear that. My parents got divorced too when I was young.

I think it is really important for you to get some in person adult input on your medical care, especially given that you are questioning the care you are getting from this doctor. Absolutely the best person would be your mother or your father or maybe there is a another adult female family member who can accompany you to your next appointment.

Visible urine in blood is not an extremely common IC symptom. It is more often a sign of infection. You need to be tested for a UTI asap.

Hope you get this resolved soon.

[Snowden1]

Hi, I just wanted to chime in and say that I do have lots of blood in my urine at times. Some of my medications do this and I tried to take Prosed DS and I was peeing mostly blood. Your uro should suggest a cysto just to rule out cancer, although this would be rare in someone so young.

I am sorry you have no family support. My mother is the exact same way - she thinks this is more in my head and it can't be that bad. But, I am not 17 either. Do you have SOMEONE a grandparent or aunt or anyone who can help you and you could confide in? You really need someone to take you seriously. I have found with my 18 year old daughter that adults (like doctors) don't take her symptoms as serious unless I or my husband go in and advocate for her. You need an advocate.

I am soo sorry this is happening to you. You are very strong to have been doing this alone. Feel free to PM me anytime.

[too_young]

My stomach is killing me and the blood is coming out in what looks like clumps when I urinate. It doesn't feel very much like a UTI which is weird because I usually always feel like I have one the stomach pain and nausea is the worst- I know its not another kidney stone because that pain was all in my side and I was actually throwing up it feels like im going crazy

[kadi]

It really sounds like you need a doctor to help you.
If your urologist won't help, then maybe your primary care doctor can get things rolling.
And even though you & your mom don't see eye to eye on this, clumps of blood is a very specific symptom and you probably need her to speak up for you.
Please call your doctor or doctors in the morning!

[too_young]

Thank you I will call my Uro in the morning im still waiting for a call back from my primary doctor I called her office and left about 5-6 messages with the nurses about a test for whooping cough. Why do doctors have to be so complicated

[Snowden1]

You also have a cough too? It sounds like you may need to go into ER just to get someone to pay attention to all of these things. Blood, vomitting, cough. My daughter had and appendicitis in Aug and had emergency surgery, you may have several things going on at once. Do you have a fever? I would still tell your mom and get someone to take you to ER. They can have another urologist look at you there. This is what they did for me.

[ICNDonna]

I absolutely agree that you need medical attention as soon as possible. If that means ER, then that's my suggestion. It does sound like it could be infection --- and an infection can worsen very rapidly.


Donna

[too_young]

The last time I went to the ER it wasnt this much blood but the only thing they did for me was give me a shot for pain and told me to see my Uro and when I got the appointment to see my Uro he said he wasnt concerned.

[kadi]

If that's the case, then you need another urologist.

My mother passed large clots of blood in her urine and fortunately, the urologist didn't just write it off as IC & he ran more tests. Turned out she had lots of sharp edged kidney stones that were in her bladder and ureters. They were translucent & didn't show up on the traditional tests. Once the doctor removed the stones, she has been nearly pain-free and has even been able to get back to a more "normal" diet. She still has mild bladder symptoms from time to time, but nothing like before!!! Finding out what was causing the bleeding actually gave her a good quality of life again because it was treatable. I'd hate to see you not get treatment for something that can be treated or cured and possibly end up sicker by delaying care.

Please keep in mind that this website is a support website with patients responding to other patients and making suggestions only about what to ask your doctors about. This site isn't medical advice and shouldn't be a substitute for getting proper medical care.

Again, it really sounds like you need to see a doctor in person about this.

[LithEruiel]

I agree, you should go to the ER or urgent care ASAP! Tell them you want tested for a UTI and whooping cough. Sometimes you just have to come out and tell them what you want...even if you're wrong about what you think you have it should still help point them in the right direction. And I agree with other posters...if you can get an older relative you trust to go with you it'd be a good idea. I'm 27 and I still have my mom or grandmother go with me to the doctor sometimes because I have trouble being taken seriously. Before I was diagnosed with IC (I was 24 then) I kept being told "it'll go away" and "drink more cranberry juice." No one seemed to believe me that I had a real problem.

I can't believe your uro would ignore blood in your urine. I have microscopic blood in my urine all the time (I can never see it) and my uro/gyn sends it for cultures all the time just to make sure even though its always just from IC. But that's just microscopic blood. IC usually doesn't cause visible blood in the urine, especially not large clots. I also can't believe your primary doctor's office would just ignore your messages if you thought you had whooping cough...this can be serious stuff! It really sounds like you need two new doctors...that's just not right.