Thank you for visiting the ICN Support Forum. We are so happy that you found us! The ICN Support Forum is home to 50,000 patients who have participated in our 24/7 support system. However, to protect the privacy of our members, members of the public can not read posts unless you have registered first.
It's easy to register! Just click the "sign up" button in the upper right corner of the page. Make sure you use a correct email address because we'll send you an email to confirm that you are a real person!! We also screen all new applicants to verify that they aren't bots or spammers! If you have any problems, please feel free to send a quick email to: [email protected]!
ive been taking over the counter pyridium like AZO for a year at least 3-4 days a week. my doctor siad for me to stop because it wasnt good for me but nothing else stoped the burning for me so i continued taking it, it slowly lost its effect on me each brand one at time till i was going through a pack of 32 every 2-3 days so now she put me on a prescription for pyridium which help a lil more... are there any long term side effect that could ruin my future?
i do take kidney a liver supplements that help keep those clean so i dont get a build up from prolonged medication use.
i want to stop but nothing else helps only pyridium.
Pyridium is not meant to be taken long term. There are other medications that might help you --- you really need to talk to your doctor about substituting something else.
Donna
Stay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool
Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]
Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]
"IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."
Urelle is similar. I've been taking it for over a year with success.
----------------------
-Amanda
34 years old, bladder symptoms all my life
diagnosed with PFD and VV October 2009; IC May 2010
Current meds:
Cystoprotek 2 pills twice a day, Hydroxyzine 10 mg, Gabapentin 600 mg, Myrbetriq 25mg, Zoloft 25 mg, Mircrogestin, capsaicin cream (for vulva)
Other past treatments:
IC diet, physical therapy, Traumeel injections as needed, TENS unit, heating pad, instills with sodium bicarb, lidocaine, and mucosa compositum
Tried and didn't work:
Pyridium, Singlair, Nortriptyline, Elmiron, lidocaine and heparin instills (worked at first, then didn't anymore), various creams, acupuncture
I have taken pyridium forever. I don't take it everyday but there are times when I HAVE to have it. I have a regimen I follow. I use my hot water bottle that I lay across my pelvic area, my rice filled sock that I heat in the microwave that I place between my legs in the vaginal area, and a pyridium. I put my legs up on two pillows and put on my headset and get my Ipod and put on one of my audio books and let Miss Jane Austen take me away. The warmth of the hot water bottle in the pelvic area and the warm rice in the vaginal area against the urethra is so much more comforting. I also put a few moist cotton makeup remover towels in the labia area because I find the moisture makes it much more comfortable with the heat. (Am I allowed to say these things?) I don't and would never use pyridium everyday or for long term use but I use it whenever I have a bad flare and in the past 3 months I would say I have taken it maybe 4 times. My mother died of kidney disease in 1979 and as far back as I can remember as a child she had *orange pee* and always took pyridium so I know it has been around forever. I got sick once in Norway and unfortunately had a 6 mm kidney stone stuck in my ureter and my IC was acting up and as a matter of fact was not even aware that I had IC at the time. I had diagnosed myself when I was in nursing school after reading a small blurb about it in a publication. It was just something someone mentioned in an article...and not important enough for the masses and not enough had suffered from it yet. I had not been diagnosed by a urologist and asked the doctor for in Oslo for some pyridium and he told me it was not available there. He said it had been discontinued for use thru Europe. I had a friend in Germany who was a doctor and he told me the same thing, that it was not allowed in that country either so I asked him what they gave to women who suffered from the problem. He told me just strong ibuprofen and codeine. I felt very fortunate we have it available in this country and I stockpile mine. For some reason it works better for me than Prosed so I prefer it as an analgesic. Then again it is a matter of what works for one does not work for all. At one time or another I think I have tried some of the things that I have seen some of you mention on this board. Some worked but very few did. It has been hit and miss. Good luck to all of us.
I've asked 2 pharmacists (both who routinely fill my rx's) and was told that pyridium is ok to take regularly barring any serious medical conditions involving the kidneys or liver (ie: disease). Only your rx'ing medical team can tell you whether a med is safe for you or not. Dont hesitate to ask your Dr and pharmacist. (I personally ask my pharmacist questions that pertain to meds; Dr's dont know all of the potential issues meds can cause).
Wishing you well.
(\__/)
(o.O )
(> < ) This is Bunny. He's on his way to world domination.
I have been taking Pyridium daily for about 2 years now. I was taking the over the counter AZO stuff before but it didn't work as well so I was given the really stuff. I too asked my Pharmacist if it was okay to take it daily. He told me that it was fine. So that has been the case for 2 years.
Started Vaginal Valium Suppositories April 2014
Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
Interstim repair December 2008,Removal of the Interstim August 2011,
6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
Diagnosed with Raynaud's Syndrome November 2013
Ambien 5mg for sleep.
Elivil 50 mg at bed
Lisinopril 20mg in AM
Effexor 225 mg
Oxycodone 10 mgs 2 x a day for pain
Baclofen 20mg 3x a day
Phenazopyridine 200 mg as needed
Omeprazole 20 mg at night
Lyrica 450 mg daily
Requip .50 mg at night
Ketorolac 10 mg as needed for migraines
Hi, rpinion1 ~ I have also been told by my doc that I can take Pyridium as needed an shouldn't worry. It does help me and I'm thankful I have it. I know it's an individual thing between you and your Dr as he/she knows your overall health.
Take care...
Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure. I've found answers...so can you...keep the hope.
11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
8/2010 Surg gallbladder
TREATMENTS (updated 4/15)
IC Diet since 8/2009 (Able to vary 4/15)
Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
*DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret
Comment