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I have IC

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  • I have IC

    My results just came back from my cystoscopy. I do indeed have IC.

  • #2
    HI, temari67 ~ I'm so sorry that you got a positive diagnosis although it's probably such a relief to have a name to go with your symptoms.

    Prayers that you'll find a treatment program that works for you. There are so many here to help you out along the road.
    Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure. I've found can you...keep the hope.

    11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
    8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
    8/2010 Surg gallbladder
    TREATMENTS (updated 4/15)
    IC Diet since 8/2009 (Able to vary 4/15)
    Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
    Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
    Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
    *DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
    Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
    PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret


    • #3
      thank you


      • #4
        stay on the ic diet, and a group hug.
        <a href=";current=Picture005.jpg" target="_blank"><img src="" border="0" alt="Photobucket" ></a>


        • #5
          Hey there,

          My name is Molly, and I have I.C. as well as Fibromyalgia, Pelvic Floor Dysfunction, Endometriosis and IBS. I'm 18 and enrolled in an online college, so I can totally relate to how you must be feeling. I was diagnosed when I was 12 by a Cystoscopy and since have improved slightly, although I still flare up quite often.

          I'd like to get to know you more, if you'd like, and perhaps help you with the challenges and frustrations that come along with being a teenager with I.C. - Since you're so newly-diagnosed, I'd be happy to be the "veteran" that can answer questions you might have.

          Hope to hear from you soon!
          Diagnosed with IC in 2005, since then have been diagnosed with an unspecified autoimmune disease, with inflammation in my bladder, colon, left knee, left ear, left eye, lungs and pericardium. Argh!

          Medical research addict.

          Likes: hot baths and naps with cats