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  • My Symptoms

    Hello, I'm new here.

    My problems started after TURP surgery for BPH. Essentially, I experience urethral/subrapubic discomfort starting about 3-5 minutes AFTER urination which can last for hours. Foods/drinks on the IC avoid list will greatly exacerbate the problem. The urologists are confused; my urine cultures are negative and nothing can be seen on the cystoscopy. They vacillate between IC and CPPS in their diagnosis.

    I saw a similar thread here from 2017, but didn't want to 'necro post'. Any other men experiencing similar problems, possibly with a deterministic diagnosis? This is extremely debilitating and has affected almost every aspect of my life. I recently started acupuncture/moxibustion, but it's too early to tell if makes a difference (I did my first session last week). Any advice would be greatly appreciated.

  • #2
    First of all, I'd like to say to the IC Network.

    I understand how frustrating it can be to have a physical problem without a diagnosis. It's not unusual for someone with IC to have negative cultures. The fact that foods and drinks on the IC "avoid" list are a problem for you points towards IC. One thing I suggest is that you keep a diary while working towards diagnosis. And I think it would be a good idea to stick with the diet.


    Donna
    Stay safe

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      Have you thought about trying pelvic floor therapy? Sometimes our pelvic floor can be the problem and cause bladder symptoms. I’m currently in PFT and it has done wonders for me. It can take some time to feel better but it’s worth it!

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      • #4
        Yes, I have an appointment to see pelvic floor specialist PT in about a week and a half. I'm hoping for the best.

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