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hello
I live in Maryland and hope to speak with as many people as possible esp. men and their stories and therapy?
Over the past several years I noticed that I was starting to urinate more at nigh actually waking me up. After 2-3 years I decided to go to URO to get checked out. After that examination I have never felt the same, I have had ups and downs.
Tried the antibiotic route: 2 months of Cipro and Tetracycline. It seem to work at times but overall it ultimately didn't.
I had a Cysto and a moderate narrowing was found and thought to be the cause of the urination. I went on Cardura and had 3 months of no problems.
Then I had a reoccurence about a month and a half ago, decided to have a hydrodistention and there were small hemorages in the bladder so my Uro gave me the news I/C
Post URO I thought I had a plan, use the therapy gained by distention for a few months until Elmiron starts to kick in. Well post operative euphoria was there and i felt great but 1 week later I found mysef in a flare.
I have heard and read alot of advice from Dr's
I hear to take 600Mg of Elmiron (Re-line bladder) instead of the traditional 300MG. Take Atarax (Anti Inflamatory) before bed, and perhaps Poly Citra K to alkinalize urine. The strict diet aviding acids goes without saying.
How do you IC's feel about Elavil, given that I'm a finance guy that needs maxim brain efficiency?
How does anyone feel about suppliments such as Prelief, Tens, and Alganot?
I also would like to know what are the normal meds IC's are on and what doses if you would be willing to offer that up?
What can I expect as far a flares if I stay on diet and stay true to meds... Can I function normally? I know everyone is different but I'm just polling here to find duration and frequency of flares. I'm more than willing to share any intimate details of my experience with anyone since I know how hard this can be!!!!
I'mlucky to be near University of Maaryland where I can see one of the top I/C teams, I have an appt next month and hope to glen some understanding of the new proteins they found in urine of IC patients I will update when I get some info...
PS I'm flarring now wanting to be normal again
Over the past several years I noticed that I was starting to urinate more at nigh actually waking me up. After 2-3 years I decided to go to URO to get checked out. After that examination I have never felt the same, I have had ups and downs.
Tried the antibiotic route: 2 months of Cipro and Tetracycline. It seem to work at times but overall it ultimately didn't.
I had a Cysto and a moderate narrowing was found and thought to be the cause of the urination. I went on Cardura and had 3 months of no problems.
Then I had a reoccurence about a month and a half ago, decided to have a hydrodistention and there were small hemorages in the bladder so my Uro gave me the news I/C
Post URO I thought I had a plan, use the therapy gained by distention for a few months until Elmiron starts to kick in. Well post operative euphoria was there and i felt great but 1 week later I found mysef in a flare.
I have heard and read alot of advice from Dr's
I hear to take 600Mg of Elmiron (Re-line bladder) instead of the traditional 300MG. Take Atarax (Anti Inflamatory) before bed, and perhaps Poly Citra K to alkinalize urine. The strict diet aviding acids goes without saying.
How do you IC's feel about Elavil, given that I'm a finance guy that needs maxim brain efficiency?
How does anyone feel about suppliments such as Prelief, Tens, and Alganot?
I also would like to know what are the normal meds IC's are on and what doses if you would be willing to offer that up?
What can I expect as far a flares if I stay on diet and stay true to meds... Can I function normally? I know everyone is different but I'm just polling here to find duration and frequency of flares. I'm more than willing to share any intimate details of my experience with anyone since I know how hard this can be!!!!
I'mlucky to be near University of Maaryland where I can see one of the top I/C teams, I have an appt next month and hope to glen some understanding of the new proteins they found in urine of IC patients I will update when I get some info...
PS I'm flarring now wanting to be normal again
Good luck and keep me posted!! ~mel~
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