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Pelvic Myoneuropathy definition

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  • sonick
    replied
    I think this is the crux of my entire disease process.

    I picked up gray's anatomy and learned where the muscles connect and flow in that area, and was able to focus in on their relaxation..... was focused much too high before without reading about anatomy.

    I woke up pain-free AND with a little morning spirit for the first time in a couple years after tying a string on my finger to remind me to consciously relax the levator ani and accelerator urine (so far). I think the material you posted may be highly relevant in the final disposition of IC.

    I should also note that this is the ONLY explanation for the massive amounts of histamine in the rest of my GU tract seen under cystoscopy; IC in and of itself doesn't really explain crimson inflammation on every square inch of the tract.

    I still have this string tied on my finger. I have a renewed hope that I am going to beat IC, Worth a try for doggone sure !

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  • spriley
    replied
    Hi Clint,

    Welcome to the site. I am a 24 year old male who has had IC for 2 years. It is important to know that there are other men with this disease. Let me know if you want to compare stories.

    Shane

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  • auntiedeb
    replied
    Hi Welcome to the site. I haven't read any of the books yet. Mark thanks for the inforamtion on pelvic neuropathy. I think I may have that. Hang in there. there shope.

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  • C110164
    replied
    I am 38 year old male and was just diagnosed with IC three weeks ago. I just found this website today. The article Mark posted perfectly describes me as well. I am reading a book right now entitled "A Headache In The Pelvis" which follows this line of thinking as well. I actually got a phone call from one of the authors, David Wise, Ph.D., who suffered from Chronic Pelvic Pain for 22 years. He has been symptom free for 8 years. Has anyone else read this book, or better yet, tried his treatment program? He is connected with Stanford University. Any information anyone has would be appreciated.

    Thanks, Clint

    Leave a comment:


  • Jo Ellen Cullins
    replied
    Hangin' Tough, Unless I have to, a cup or two of coffee in the morning is still something I haven't been able to go without yet. We grind our own beans and for some reason that seems to be less acidic. We use Spotlight coffee from Krogers and there is a low-acid coffee sold from this site. I do put a good deal of milk in my cup and also use Prelief to eliminate the acid. Getting used to the diet was frustrating at first but has become better with time. If I cook something for my husband and daughter that I can't have, I just cook something different for myself. Certainly don't blame you about the cysto. It is very painful for me also. Jo

    Leave a comment:


  • srwishert
    replied
    Jo
    Thanks for the kind thoughts. I fear that my days of eating and drinking as I please have come to a sad end. I don't know if my wife and daughter will be able to cope with me if I can't have my coffee. After reading some info on IC and this board, I feel rather lucky that my Uro diagnosed me so quickly (less than 6 months). I really don't want to go through another cystoscopy anytime soon (last 3 visits). This disease is really a pain. Pun intended. Keep up the fight.

    Hangin' Tough

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  • Jo Ellen Cullins
    replied
    Hanging Tough: Hello fellow Texan and welcome to our support group! Following a real strict IC diet at first may help with some of the symptoms. I'm not able to tolerate any of the available daily medicines and treatments(at least the ones that I'm aware of or willing to submit myself to) for IC due to drug allergies so diet is my main way to deal with it. Through trial and error, I've been able to find out most of the stuff that causes a problem for me. Hope you feel better soon, Jo

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  • srwishert
    replied
    I was diagnosed with IC about 6 weeks ago. This, after being treated for Prostatitis and BPH for several months. I have a lengthy history of kidney stones, 13 at last count. The last one had to be surgically removed. My urgency, frequency and pain (pressure) problems started after the surgery. We are in the very early stages of trying different medications. Currently I take Elmiron, Elavil and Hydroxizine. I can not tolerate the Elavil and Hydroxizine, they make me zombie like. I really just wish this would all go away.

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  • cpps
    replied
    I put it together by drawing from various sources. It's where I think a lot of the research is going to go.

    Leave a comment:


  • havehope
    replied
    Mark,

    This article seems to have put all of my symptoms in a nut shell!!! Great article. Where did you get it?

    Leave a comment:


  • Mark (Male IC website admin)
    started a topic Pelvic Myoneuropathy definition

    Pelvic Myoneuropathy definition

    Pelvic Myoneuropathy in its most simplified and broadest terms, describes a process in which people of a particular genetic type and with tense, anxious, and often atopic (allergy-prone) dispositions, develop a chronic process in their pelvises that involves muscles, nerves and mast cells. Such individuals tend to tense the muscles of their pelvic floors subconsciously and continuously. This clenching of deep muscles can be provoked either by the individual's tense disposition, or it can be the result of a "guarding" response to a preceding trauma to the pelvic or spinal area, pelvic surgery, bicycling, childbirth, long periods of sitting and stress at work, and in some cases, urinary tract infections (prostatitis and cystitis). Other common events that lead to injury are:
    • <font size="2" face="Arial,Verdana">chronic tense holding patterns that develop in childhood as a result of sexual abuse, traumatic toilet training, abnormal bowel patterns, guilt surrounding sexual feelings, dance training or stress
    • <font size="2" face="Arial,Verdana">repetitive minor trauma or straining with constipation or urinary obstruction
    • <font size="2" face="Arial,Verdana">other inflammations of pelvic organs such as urethritis, endometriosis, vaginitis, proctitis or anal fissures, or referred pain from other attaching muscle groups or viscera or nerves.
    <font size="2" face="Arial,Verdana">
    The subsequent muscle spasm and hypertonicity of the pelvic muscles leads to a hyperirritability of the muscle fibers. The hyperirritable bundles of fibers within the muscles of the pelvic floor become "knotted", inelastic and unable to contract or relax. The overstimulated nerves innervating these muscles, through a complex process involving the central sensitization, intermingling of afferent (sensory) fibers, neural wind-up, intercommunication among nerve plexuses, neural cross-talk, viscerosomatic convergence, the nature of visceral afferentes, and individual variations of anatomy and neurophysiology, eventually set up a process in the tissues of the genitourinary tract that leads to pathology. This pathology results when the nerve endings overproduce chemicals called neuropeptides. Neuropeptides stimulate powerful immune defence cells called mast cells. Once stimulated, these cells produce a wide range of chemicals (histamine, TNF-alpha, inflammatory prostaglandins, leukotreines) that cause pain, inflammation and all the symptoms of sterile prostatitis, urethritis, orchialgia, epididymitis, cystitis and vulvodynia. Therapy is multimodal, involving intrapelvic deep muscle "trigger point" massage and release, specific stretching exercises, stress control and special forms of pelvic muscle relaxation training, nerve therapy (neurontin, botox*), mast cell protectives and mast cell byproduct amelioratives (ProstaQ, Algonot, antihistamines, alpha-blockers, etc).
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