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  • new to ic question on back and groin pain

    I was dignosed with IC abut a month ago. The doctor put me on Elmiron and antitriplin. With this medication and the diet my symtoms have greatly improved. My question to anyone is does the symtoms worsen after hard physical work, mine seem too, especially the back and groin pain. If there is anyone with similar problems i would like to here from you

  • #2
    Welcome to the IC Network, Anthony. I can certainly relate to discomfort from exertion. I have a problem if I try to lift anything that's at all heavy. Sometimes it's a real nuisance to have to get help to move a bag of dog food, but it's just one of those things I can't do without abdominal pain.

    I get back pain with any IC flare --- or if I stand for a long period. Maybe that's why I'm always about ten years behind on my ironing?

    The elmiron can take six to twelve months to really help, but the amytriptaline (I have never learned to spell that one) should help dull your pain, as well as helping you sleep. My husband has some arthritis in his knees and he takes the amytrip.... helps with his pain.

    Have you found our Patient Handbook? It's at http://www.ic-network.com/handbook/ and contains a real fund of information.

    If you have questions, feel free to post them. We aren't physicians, but are willing to share our own experiences.

    Sending healing thoughts,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      Hi Anthony,
      I find that I deal with the lower back pain pretty regularly, but when I do physical work it is worse. I take ultram for that pain and it helps quite a bit. I do however, have fibromyalgia too, so that contibutes to my joint pain quite a bit. Hang in there, and welcome to the site.
      rickeysnannie
      Sheila's Charming Place

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      • #4
        Anthony,
        Many people who have IC also something called Pelvic Floor Dysfunction, where your pelvic floor muscles are weak and easily moved around. What this means is that when your bladder goes into spasms from pain, it effects the pelvic floor muscles around it and causes them to misalign. But also, if you do any physical action to misalign these muscles, these muscles can "pull" on the bladder to cause pain. This can be corrected with physical therapy and hard work. You should try to see if your uro knows anything about it.

        Originally posted by anthony:
        I was dignosed with IC abut a month ago. The doctor put me on Elmiron and antitriplin. With this medication and the diet my symtoms have greatly improved. My question to anyone is does the symtoms worsen after hard physical work, mine seem too, especially the back and groin pain. If there is anyone with similar problems i would like to here from you

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