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  • Testicular discomfort

    Here's my story in a nutshell: I'm a 34 y/o man, diagnosed in February 2007 following the usual cystoscopy w/hydrodistention. I'd guess this all started in mid-2004, flared once in 2005 and twice in 2006. My symptoms are frequency and mild urgency. I've finished just about three months on Elmiron, also taking aloe vera caplets. My doctor is confident that we'll get it under control.

    Here's my question. I've had mild pelvic pressure only since the cystoscopy. It also often feels like my left testicle is 'swollen.' My urologist checked and found no abnormalities, no hernia, etc. It's most noticeable when I sit with my legs crossed. I wouldn't say it's painful, just uncomfortable.

    Anyone else have a similar experience?

  • #2
    when you said yu just about 3 months of Elmiron, dose that mean you discontiued it?
    I know Elmiron can take up to 8 months to feel the full effects.
    Sorry I can't help you on the other issues.
    'The will of God will never take you where the Grace of God will not protect you.'

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    • #3
      Hello and
      Hugs
      Ronda

      ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


      Link to Patient Handbook:
      http://www.ic-network.com/handbook/

      Diet Reference Sheet:
      http://www.ic-network.com/diet/icndi...tsheet0909.pdf

      Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

      Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

      Meds I have Tried:
      Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
      Lexapro< Bad reaction to this med!
      Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

      Dx With IC in Nov 2006 with Hydro/Cysto
      Hydro/Cysto Caused Bladder to Rupture.

      Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



      ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

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      • #4
        when you said yu just about 3 months of Elmiron, dose that mean you discontiued it?



        No. I started it in mid-March, so I'm about at the three month mark. Should have been clearer.

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        • #5
          I took Elmiron for over 2 years and it didnt do a thing.In fact,I believe it reduced my bladder capacity.It left a salty taste in my mouth all the time.
          You couldve strained yourself lifting something, or you drank something like cranberry juice.I get the same effect when I drink cranberry juice only.The pain travels to the testicles.
          54 year old male
          Diagnosed with IC in 1994
          Had symptoms since 1992
          Three cystoscopies.One biopsy with hydrodistention.
          This is what I have tried,Dmso cocktail,Elavil,Atarax,Hytrin,Detrol,Pyridium,Elmiron,Allegra,Augmenti n,Flomax,Ditrapan,Vesacare.
          Sent urine samples about 10 years ago to the famous Dr Fugguzatto.Went through plenty of Dr's which took about 2 years for an IC diagnosis.I am considered having one of the worst IC conditions known to my doctors.
          Thanks to reading the great info on this board I am presentally trying 3 more natural remedies.Msm,Glucosamine,and Quercetin

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