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  • Question About Low Dose Valium

    Hello All,

    I am not yet diagnosed with IC, however I was given a diagnosis of PFD. I was prescribed Valium 2mg 3xday about a month ago. I stopped after just a few days, because I felt no benefit and thought it was maybe contributing more to my depression. After doing more research I realized that many men and women benefit from this because it has a muscle relaxant effect. I had been taking xanax and wrongly assumed it would have the same effect. Apparently xanax does not have the muscle relaxant indication like Valium.

    My question is... Is this supposed to relieve symptoms after the initial dose or does it take a few days, weeks, or longer to realize any benefit if there is going to be any?

    I started to take them again today and if I should have already felt some of discomfort easing up (urgency, penile pressure, dull penile pain, rectal pain, etc.) it's not happening. I will try longer if some of you are able to tell me it can take a while to kick in.

    I'm going back to my uro next week, so I won't be able to ask him until then.

    Thank you for any help.

    I just wanted to add something to maybe help me to rule out IC or maybe not...
    I just had lunch at Chick Fil A about an hour ago. I ate a spicy chicken sandwich with Pepper Jack Cheese, waffle fries with Ketchup, and a Root Beer. I don't feel better or worse. I wanted to test myself with this to see if it would cause me more discomfort. Maybe it will later in the day? But if I don't feel any worse later, could I still have IC? I have been pretty good with avoiding these foods as much as possible for a while, but had no improvement regardless. Same urgency, discomfort, etc.
    Last edited by So Frustrated; 07-13-2011, 08:56 AM. Reason: Side Note

  • #2
    The low dose valium will not give instant relief, it is an ongoing slow help to release those tight muscles. It is always best to discuss any feelings of increase in depression or adverse affects with your Dr. Always let them know before starting or stopping any medication. Did the Dr give you both xanax and valium?

    Also, as to the food sensitivities. Yes, you can still have IC with no food sensitivities. I have very few food sensitivities yet I have severe IC. Mine, I have found is much more nerve related and has been helped by gabapentin and cymbalta. I guess both types are nerve related, but different types of nerves. I hope this helps.

    Sandra
    Link to the patient information, everything from What is IC? to Disability
    http://www.ic-network.com/patientlinks.html

    American Urological Association Clinical Guideline
    Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom
    http://www.auanet.org/content/guidel...ent_ic-bps.pdf

    Comment


    • #3
      Originally posted by sailawaygrl View Post
      The low dose valium will not give instant relief, it is an ongoing slow help to release those tight muscles. It is always best to discuss any feelings of increase in depression or adverse affects with your Dr. Always let them know before starting or stopping any medication. Did the Dr give you both xanax and valium?

      Also, as to the food sensitivities. Yes, you can still have IC with no food sensitivities. I have very few food sensitivities yet I have severe IC. Mine, I have found is much more nerve related and has been helped by gabapentin and cymbalta. I guess both types are nerve related, but different types of nerves. I hope this helps.

      Sandra
      Thank you for your response Sandra. The problem I am running in to has been created by the multitude of help I am trying to seek out. Between the urologists, psychiatrists, psychotherapist, PFD physical therapist, etc. I am getting contradictory information. The psychiatrist has me on xanax for anxiety and the urologist has me on the valium for PFD. I didn't want to take both so I am trying to decide which is better. Unfortunately they both seem to have a different effect for me. Both possibly being beneficial.

      The PFD therapist and the psychotherapist both tell me I should be trying to hold off the urgency and retrain my bladder. So I've tried this and suffer through extra hours of discomfort to hopefully "lessen the urgency over time" as they put it.

      After speaking to some IC patients, I was told that is not a good idea. But if I don't know what I actually have, I can't really figure out who is right. I hate all the possibilities out there that are near impossible to rule in definitively. If I broke my arm I would know through an X-ray. Unfortunately I have quickly learned that pretty much any condition in the pelvic area is extremely difficult to accurately diagnose. We have to do a lot of ruling out on all these things in order to try to treat it properly and even then there are no guarantees for everyone. I am truly in uncharted waters with all of this.

      Comment


      • #4
        For me the food sensitivities didn't show up right away but seemed to have a cumulative effect. If I had an offending food or drink it took a few repetitive ingestions before it caused me pain. It was harder to figure out my triggers due to this because once was ok, but a few weren't. I had to chart what I had been eating and drinking and how often before I found the offenders. A couple of chips with salsa didn't bother me but if it was several times a week it would send me in to a terrible flare. Ativan helped me with my pelvic floor spasms but it took a while to have a really good effect. My pelvic floor was such a mess that just taking Ativan once or twice wasn't going to solve anything. Along with the Ativan, pelvic floor stretches, epsom salts baths, and eliminating caffeine my pelvic floor is now functioning normally.

        Comment


        • #5
          Food sensitivities may take some time to build up and cause a flare. There are some drinks that will cause me to flare within hours, but some foods can take a full day to strike.

          I was prescribed a low dose valium on a temporary basis for a very sore neck and it did help relax my neck and shoulder muscles. If you're having bladder spasms there are other medications that might help --- I have hyoscyamine on hand to take for bladder pain.

          Many, if no most, IC specialists will not recommend bladder retraining when you are in pain. When you're feeling better you may want to consider it, however.

          Yes, it's possible to have IC without food sensitivities, but most of us do have at least a few.

          Sending healing thoughts,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            Thank you...

            I appreciate the feedback. To answer Donna, I hear a lot about the spasms and I don't even know if I experience them. I will explain everything I have been experiencing and maybe that will help things.

            Penile pressure and dull pain near the tip, which is relieved by voiding for varying periods of time. Anywhere from 30 minutes to an hour most days. Slight rectal discomfort which seems to get a little worse after a bm, but at the same time relieves the frontal discomfort for a brief time (maybe because I usually urinate during these). BM's have been more frequent and often small amounts and/or diarreah. I have no bladder pain or pain anywhere aside from the penis and rectum (occasionally). Hot baths really provide relief and for a short period after. If I feel dehydrated in the evening I end up having to drink a couple cups of water, which wakes me once or twice to void. My stream and volume is always piss poor (pardon the pun)

            I just want to find the solution to all this!!!

            Thank you all again for your feedback.

            Comment


            • #7
              I does sound like spasma. You might talk with your doctor about a smooth muscle antispasmodic.

              Hugs,
              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment


              • #8
                I will do that

                Thank you Donna. And thanks for the hugs I can't wait to find something that will help me.

                Comment


                • #9
                  I'm with Donna it does sound like spasms, when I was first diagnosed I explained it to my uro "it feels as if I've had a constant UTI" but when I void the pain only got worse then lifted a bit to start the same cycle all over again. I think in the beginning I didn't know this was a spasm all I did know was that I wanted the pain too go away. I realize you take Valium and Xanax for two different reasons but I also know that Valium is used for anxiety as well, so maybe if your dr allows you can just take the Valium.

                  I too have PFD and am in Physical Therapy which has helped. I hope you find the right combination of meds and start feeling better soon.
                  IC diagnosis 3 weeks ago.
                  Vesicare 10 mg once daily
                  IBS and Gerd-Zegerid
                  IC diet
                  Elmiron 100 mg three daily
                  Hydroxyzine 25 mg at night
                  Amitriptyline 10mg at night
                  Diovan 60/12.5 daily
                  Topral 50 mg daily
                  Zoloft 100 mg at night
                  Klonopin .5 twice daily

                  Comment


                  • #10
                    Originally posted by greeneyes View Post
                    I'm with Donna it does sound like spasms, when I was first diagnosed I explained it to my uro "it feels as if I've had a constant UTI" but when I void the pain only got worse then lifted a bit to start the same cycle all over again. I think in the beginning I didn't know this was a spasm all I did know was that I wanted the pain too go away. I realize you take Valium and Xanax for two different reasons but I also know that Valium is used for anxiety as well, so maybe if your dr allows you can just take the Valium.

                    I too have PFD and am in Physical Therapy which has helped. I hope you find the right combination of meds and start feeling better soon.
                    Thanks greeneyes. I see that you were just recently diagnosed. Has your treatment helped your pain so far in a noticeable way?

                    The problem I find with valium is that it seems to affect me differently than xanax mentally. The xanax takes more of the edge off of the anxiety than low dose valium. I'm only taking the valium now, because I don't like to take two benzos at once. I am hoping that the relaxant effect happens soon and then my anxiety should lessen as well. It's a very scary feeling to have chronic pain and discomfort and not getting accurate answers from the doctors on what the cause is. They just say things like "It's not life threatening", "it will get better", etc. Meanwhile I suffer while I try this "shotgun" approach to treat it and so far no success.

                    Comment


                    • #11
                      Has your treatment helped your pain so far in a noticeable way? I'm still trying different meds, some days my pains around a 2 or 3 some days it's around 10.

                      To be honest the Vesicare and Rapiflo help with the going to the bathroom, I was going on my worst days about 30 times on my good days I go around 15. I tried the DMSO( DSMO) instill which helped the first 4 times then nothing, had a hydo which took the pain away for about 10 days. I have a follow up appt Monday so I'll see what's next on the med list.

                      The Rapiflo is a med for prostate (funny since I'm a female) but it also helps with relaxation of the bladder neck muscle, you might want to ask your Uro about that one, you never know what's going to help until you try it. I also have a tens unit that I use at home for the pain.

                      I hope some of this helps you out.
                      IC diagnosis 3 weeks ago.
                      Vesicare 10 mg once daily
                      IBS and Gerd-Zegerid
                      IC diet
                      Elmiron 100 mg three daily
                      Hydroxyzine 25 mg at night
                      Amitriptyline 10mg at night
                      Diovan 60/12.5 daily
                      Topral 50 mg daily
                      Zoloft 100 mg at night
                      Klonopin .5 twice daily

                      Comment


                      • #12
                        Interesting that you brought up Rapaflo...

                        I actually work for the manufacturer (Watson). My Uro handed me a sample bottle and I was a little surprised since Flomax has such a huge market share. I guess since Flomax went generic, the Docs have the Rapaflo samples on hand instead and are starting to write for it more. Good news to me.

                        I don't want to speak negative about my company of course, but Rapaflo didn't seem to help me. I tried it for a couple weeks and for men, there's one side effect that is very strange...Retrograde Ejaculation. I really couldn't get used to that. But it's good to hear that many people are having success with it, and even women which I don't think they intended to be candidates for it originally.

                        I tried Flomax to see if that would alleviate the side effect I didn't like. Unfortunately that completely stuffed up my nose at night and I couldn't sleep well at all. I tried it for two days and there was no way I could take it any longer.

                        I have heard some success stories with Enablex which is similar to the Vesicare you take. I may ask what he thinks about me trying that. My only fear is not being able to void and having to get cathed, but apparently that's rare. So many things to try and so far I haven't found any magic bullets or even slight relief. Still trying though.

                        Comment


                        • #13
                          I'm on Enablex. It doesn't make my symptoms go away entirely but it allows me to ignore the "gotta pee" signal until I actually do have to go. I'd recommend keeping track of when you last went pee, though. Wouldn't want to ignore it for too long, for obvious reasons.
                          "I used to think it was awful that life was so unfair. Then I thought, 'wouldn't it be much worse if life *were* fair, and all the terrible things that happen to us come because we actually deserve them?' So now I take great comfort in the general hostility and unfairness of the universe. " ~ Marcus Cole

                          Comment


                          • #14
                            I have had IC for a little over 2 years now and at the beginning saw many doctors including some big names. I found it interesting that there is a lot of disagreement about treatments among the doctors. I, too, took a low dose of valium, 1 mg. 3 times a day, for quite a few months. It did help with spasms and overall pelvic floor discomfort that I was having. I was also taking baths twice a day. I know longer need the valium (or the baths) on a daily basis but take a mg. or 2 if I need it. The diet is also cumulative for me. I can eat something "bad" now and then without much discomfort, but if I eat it regularly I will have a flare up. For me, treating IC has involved a lot of trial and error. I know that's not what you probably want to hear. Believe me, I know it sucks. But I have mostly good days now as long as I stick to my treatment and avoid my trigger foods. On thing that works particularly well if I'm having weak stream is D-Mannose. My naturopath recommended it when I was diagnosed with a UTI back in May. It's a sugar that you mix with water and can buy it at a health-food store or order it online. It is supposed to prevent bacteria from sticking to the bladder wall, like cranberry juice, but without the acid. I buy it in pure powder form. I notice that if my bladder seems irritated and the stream gets weak, and I use it for a few days, it goes back to normal.

                            Comment


                            • #15
                              Most of the drugs like Flomax and Rapaflo have retrograde ejaculation as a side effect. The only one that doesn't is Uroxatral. Unfortunately, both Rapaflo and Uroxatral did not help my IC symptoms very much.

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