No announcement yet.

I need some opinions of my coexisting conditions

  • Filter
  • Time
  • Show
Clear All
new posts

  • I need some opinions of my coexisting conditions

    Really need opinion from male IC and IBS patients. I was diagnosed of IBS 4 years back and IC like 3 yrs back, though till date don't have any common IC symptoms. Only things that has worsened is something called PFD. Anytime I sit, I have to keep my muscle tight or spasmtic state. Even food triggers are effect those symptoms only. My biofeedback is ok but still have issues like stress incontinence, leakage upon sitting on hard chairs. It feels no pain but pressure in muscles. It is effecting my work beyond limits and not sure where to go for this like Acupuncture, TCM etc?. Is diagnosis really important in my case as I keep hearing of things like prostatodynia, OAB, PNE ?.Just curious to know what exactly makes IBS/IC incurable, poor immunity causing depletion of bladder linning or any allergy?.

    On foods & medication side what should be definitely part of plan if IBS and OFd are important issues like anti histamines, anti anxiety, supplements ?. Baking soda makes my stomach still and more PFD. On the flour side can someone suggest me how to make good multigrain flour, while retaining its elasticity but without wheat and gluten, as i think wheat really is making again IBS worst. Also how about green tea, if not any other tea

  • #2
    Hi, Steve ~ I don't have too much to offer in the line of help, but want you to know we are hear with a listening ear. I'm very sorry you're having problems. I'm sure you'll have others more experienced than I am.

    Take care.....Blessings,
    Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure. I've found can you...keep the hope.

    11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
    8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
    8/2010 Surg gallbladder
    TREATMENTS (updated 4/15)
    IC Diet since 8/2009 (Able to vary 4/15)
    Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
    Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
    Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
    *DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
    Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
    PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret


    • #3
      I don't think you can make a multigrain flour without gluten.

      Green tea has lots of caffine and is a no no for me.

      good luck mg
      My are with you all. May you all find a way to peace and joy in your lives.


      • #4
        Hi Steve,

        I'd like to be helpful. I'm a man with IC, back pain, chronic pelvic pain, and fibromyalgia. From your post, I can't understand exactly what your issues are. Please don't take this the wrong way, but can you be thorough, and more clear? When you write "I have to keep my muscle tight or spasmtic state", I can't follow your meaning. When you refer to "pressure in muscles", which muscles are those?

        This is such a damnably difficult disease to diagnose, let alone treat, that I've found getting as much clarity as we possibly can is essential to getting the help we desperately need.

        Best wishes, and good luck to you,


        • #5
          to the IC Network.

          The PFD you mention means pelvic floor dysfunction --- there are at least several members here who are finding that physical therapy can help. It might be worth a try for you.

          Sending healing thoughts your way,
          Stay safe

          Elmiron Eye Disease Information Center -
          Elmiron Eye Disease Fact Sheet (Downloadable) -

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help:


          Diet list:

          AUA Guidelines:

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Anyone who says something is foolproof hasn't met a determined fool