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Hydro caused a long remission
Hi everyone. I am writing this just to let everyone know there is hope after all. I've been 95% pain-free since November 2003. Every once in a while I feel a little pain or burning but nothing too serious for the most part. I still never sleep through the whole night without being woken up a lot from the urge to go but it's o.k. because I don't recall ever being able to feel like my bladder was empty at night my whole life anyway. I deal with it like I always have. I am happy to report though that even that has gotten a little better. As for the pain and burning it's such a relief to not have to be constantly sitting up in bed every night for months and months before the hydro. The pain never let me lay down until it would gradually go away later in the night. The pain would cause me to sit and hug my knees during a fun event I was at only to be embarrassed if anyone asked. It really sucked as you all know. We all row the same boat after all! Looking back it's weird because it feels likes it's been ages and I feel I am not that person anymore. I know that it could come back at any time, but I plan on enjoying every pain-free day until it does. I try not to worry about it. But I am cautious of infections (which always produce the flare ups of my life after the infections are gone) and I do get a little anxious when I feel the slightest pain or burn in my bladder. I'm especially scared in the middle of the night when I'm exhausted and hesitantly looking forward to once again hitting the sack (as I used to be forced to stay awake after a midnight trip to the bathroom because of the pain and burn). Anyway, I'm just so happy that I'm not sleeping on the living room chair or even in bed in a sitting up position every night. It feels good to be normal for a while. Who knows- maybe it'll last forever! One can dream, right? Anyone who's read my story knows that I've never "not known" this pain and it is likely to come back at some point in my life anyway. I'm only 26, but it's o.k. I'll always look forward to these little remissions! It's what we have to live for no matter how long they last. Treasure them. Thank God for them. Have fun when they happen. Spend time with loved ones when you're in one. That's what I always do! I am praying for you all. I wish you all the best of luck and I will posting in my free time-as I am doing now.
Love,
Melissa
Love,
Melissa
Keep it up! 
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