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  • I'm in Remission.

    I started using Heparin and Marcaine mixer threw a cath and its the best thing i have ever done for my bladder. I'M SO HAPPY NO BLADDER PAIN!!!!! its been three weeks.

    NOW to get rid of the bladder pain.
    I never thought i would be able to post on this board but so proud that I can at least for now. wink
    Medicine taken daily or as needed:
    1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
    2. MS.Cotin 100mg 3x daily
    3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
    4. Fentanyl 100 mg Change every 48hrs.
    5. Gentamicin 80mg install after each rescue treatment
    5 Leviquin 500mg self start as needed.
    6. Klonopin 1 or 2 daily as needed.
    7. Prosed/DS as 1 every 6hrs as needed.





    I have IC, but IC doesn't have me anymore!

  • #2
    Oh, that's so wonderful! I am so happy to hear this! I hope and pray that this remission lasts forever for you!

    Love, ICY

    Comment


    • #3
      That is TERIFFIC !!!!!!!!! I am so happy for you!! You completely deserve it!

      Hugs and love,
      Jess
      Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

      Comment


      • #4
        Thank both of you from the bottom of my heart! wink kissing grouphug
        Medicine taken daily or as needed:
        1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
        2. MS.Cotin 100mg 3x daily
        3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
        4. Fentanyl 100 mg Change every 48hrs.
        5. Gentamicin 80mg install after each rescue treatment
        5 Leviquin 500mg self start as needed.
        6. Klonopin 1 or 2 daily as needed.
        7. Prosed/DS as 1 every 6hrs as needed.





        I have IC, but IC doesn't have me anymore!

        Comment


        • #5
          Hi Dixie, so glad to read that now you are having no bladder pain, that is one terrific piece of news. I imagine it must feel wonderful, you deserve it after all you have experienced. Way to go, love and hugs Iris kissing grouphug
          Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

          Comment


          • #6
            That is so great!

            Hugs and smiles,
            Donna
            Stay safe


            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

            Have you checked the ICN Shop?
            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

            Patient Help: http://www.ic-network.com/patientlinks.html

            Sub-types https://www.ic-network.com/five-pote...markably-well/

            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
            [3MG]

            Anyone who says something is foolproof hasn't met a determined fool

            Comment


            • #7
              Hi Dixie, this is wonderful news...I know you are enjoying not having to deal with the pain now.....I'm pulling for you..and hoping it will stay all good now.... happy, happy, happy !!!
              BobbieB

              Comment


              • #8
                Hooray!!!! scream
                Kim

                Diagnosed August 2001

                Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


                Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

                I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

                *****************************

                “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

                “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

                Comment


                • #9
                  WOW, WOW, WOW!!!! blink Terrific! Enjoy!

                  grouphug
                  One day at a time

                  Comment


                  • #10
                    Thank you all very much. how ever i did have a flare yesterday due to stress i was worried about my daughter she was having bladder spasm. and when they tested her urine no infection thankful the doctor knowed i knew what i was talking about and put her on anti just in case it came back as an infection and gave her some pyridium sp? so far so good but my flare was so bad i ended up seeing the doctor myself and he had to give me a demrol shot but after i slept it off i woke up in no pain again thank god for these treatments i'm taking and i even found out better news the rn said a new study came out and says if needed i can take these treatment three times a day and since i have been useing these treatments i am now using less and less pain medicine. thank god they found something that is working for me.
                    I pray to the dear lord that all of you find something that will help you be pain free soon. grouphug each and everyone of you have helped me get better without your support i wouldnt have found a way. thank you again from the bottom of my heart. what a wonderful family i have here. wink grouphug kissing
                    Medicine taken daily or as needed:
                    1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
                    2. MS.Cotin 100mg 3x daily
                    3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
                    4. Fentanyl 100 mg Change every 48hrs.
                    5. Gentamicin 80mg install after each rescue treatment
                    5 Leviquin 500mg self start as needed.
                    6. Klonopin 1 or 2 daily as needed.
                    7. Prosed/DS as 1 every 6hrs as needed.





                    I have IC, but IC doesn't have me anymore!

                    Comment


                    • #11
                      Hi Dixie! I hope that you continue to do well, and continue to be pain free. This is great!! :cool:
                      christine.

                      Newbie Angel- Giving support to those new to the boards with IC

                      Angel over the airways- Lets get the word out on IC!

                      Comment


                      • #12
                        Hello Rhonda, glad to read about the treatments helping you out, that is good news and your daughter getting the help she needed. Thanks for posting about the two of you. Take good care of both of you, love and hugs IC sister, Iris hi kissing grouphug
                        Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

                        Comment

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