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I'm in Remission I think!

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  • I'm in Remission I think!

    I feel kind of guilty posting about being in remission while so many others are still suffering, but maybe posts like this will give hopes to the ones suffering that they will reach remission too. And the newbies will know too that remission is possible in many cases.

    It seems the Atarax (Hydroxyzine is the real name I guess?) 25mg per day and Elmiron 300 mg per day (three pills per day) are really doing the trick for me.

    The main inflammation for me for some reason was in the trigone area (base of the bladder and urethra) so I guess that's why I'm getting relief kind of quick - I'll bet the medicine coats the bottom most easily, like when you put sugar in a glass and it settles to the bottom. Maybe. I dunno.

    Anyhoo, I do still take Prelief, I don't even really take it with foods necessarily but take it as almost like a calcium supplement just to help my bladder out. I figure it's a good source of calcium plus it helps heal my bladder.

    I'm also thinking of ordering Cysta-Q so that my bladder stays healthy now that it is patched up from the Elmiron.

    At this point, I am able to drink juice and eat chocolate without any ill effect whatsoever on my bladder.

    I was even able to be intimate again with my husband, will no flare afterwards and no pain during, which in my mind was a real miracle! My husband and I were both so thrilled that this dimension of our marriage was able to be restored.

    My fervent hope and prayer is that everyone who has IC will quickly come to the same comfort level that I am experiencing now and that there will soon be a cure for IC so that no one will have to suffer anymore from this.

    Love, ICY

  • #2
    WWWOOOOHHHHHOOOOO so glad to here you are in remission
    I hope you stay there grouphug kissing
    'The will of God will never take you where the Grace of God will not protect you.'


    • #3
      I agree - do NOT feel guilty!!! That is wonderful and what we all wish for!!!

      It was messages like this one from you that gave me sooooo much hope when I was new here. Make sure you still come around, OK? We need positive posts about healing, too.

      Diagnosed August 2001

      Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

      Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

      I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.


      “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

      “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy


      • #4
        Even if I never get better, I am absolutely thrilled for anyone who does and it gives me hope!

        My bellydance "sisters" , our dogs, and me.


        • #5
          That is great news, ICY!!!!! I am so happy for you! That has just made my day!

          Here's to a very long, and happy remission!

          Hugs and love,
          Jess grouphug
          Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!


          • #6
            That is such great news. I was in remisson for a week and now I am flaring. I have to get some more prelief that seemed to help my bladder. I should try the samples I have from my ic support group meetings. There is hope with ic. I pray there is a cure soon. Keep us posted on how you are doing.
            Hang in there , There is hope.
            There is hope. Prayer works.

            Love, Debbie


            • #7
              That is great news, I hope stay that way. grouphug


              • #8
                Oh ICY just read your post, and great news gal, that is wonderful. I remember when you were going through a rough time, so it was great to read the latest development. What a nice christmas present to have, remission, way to go, hugs and congrats Iris hi
                Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.


                • #9
                  I am so happy for you. I'm trying not to be too jealous wink

                  It's so true, seeing posts like that gives everyone hope. Don't ever feel bad about feeling good. REVEL IN IT!!!

                  I hope it lasts forever

                  [email protected]


                  • #10
                    Way to go ICY!!! I am so happy for you!! You give us hope that we will get better someday soon.....Christie


                    • #11
                      I'm very happy for you. I also don't post much because I very seldom have symptoms and when I do they are mild. That makes me feel guilty but just so everyone knows it took me awhile to get here but it's wonderful and I hope and pray that everyone reaches that point. Happy Holidays!!!



                      • #12
                        Woohoo!! Wonderful news that you are in remission. Especially right now with the holidays coming up. wink
                        Thanks for posting that great info. I really think it'll give the newbies something to look forward to!
                        Tons of support,

                        IC angel helping families in need for the holidays. [email protected]


                        • #13
                          Thanks everybody! I continue to pray for remission for everyone, and a cure someday for all of us so we can be well without having to take any expensive medicines.

                          Love, ICY


                          • #14

                            I am with everyone else....I AM THRILLED FOR YOU AND THANKFUL FOR THE HOPE YOU HAVE GIVEN ME AND EVERYONE ELSE!!

                            I hope that you stay this way, and that you have really found the treatment that works for you.
                            That is wonderful news.

                            "Well the Secret O'Life is enjoying the passage of time." ~James Taylor


                            • #15
                              Congrats ICY!!

                              Like others have said, reading about people in remission gives me hope!

                              I am so glad to hear you found a treatment plan that works for you and are feeling better!

                              Nicole wink