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  • i set a record yesterday

    Omgsh, you guys are NOT going to believe this. Drum roll please. I only peed NINE times yesterday ! ! ! ! Omgsh this is a miracle! For the last 11 years a "good" day meant that I went 25-30 times & a "bad" day was 50-60 times. Yesterday was honestly the FIRST day in eleven years that I felt no pain. I even forgot that I had a bladder! And I haven't even taken vicodin in a week!! Turning cartwheels......... Thank you God.
    Lee Ann
    Current Rx Meds:
    Atarax, Ditropan, Elmiron
    Prior to pregnancy: The above 3 meds PLUS Neurontin, Topamax, Loratadine, continuous OrthoCyclen, Lidocaine Patches PRN, Temazepam PRN, & Vicodin PRN
    Hooray for babies!
    Misc. lifesavers: Hot baths, ThermaCare Heat Wraps, Ice Packs. The IC Diet has changed my life.
    Didn't work for me:
    Detrol LA, Amitryptiline, Morphine, Percocet, TENS unit, Interferential Pain Stimulator Unit, Hypogastric Plexus Nerve Block
    IC (Mod-Severe) since 1996

    UPDATE: 5/21/08 Pregnancy and breastfeeding afterwards have alleviated my IC symptoms more than anything, EVER. Most days are 100% pain free & I now have normal frequency (as long as I take these 3 meds).


    My little sweetie! Jack weighed 9 lbs 12 oz and was born via c-section on Feb. 28, 2008...

  • #2
    What made the difference?
    Kadi

    -------------------------------------------------------------
    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    ------------------------------------------------------


    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest
    "


    Current treatments:
    -IC diet
    -Elavil 50mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic when doing an instillation to prevent UTI
    -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!

    Comment


    • #3
      idk

      I'm not sure, but last week I started having bad spasms so I started taking Ditropan and stopped doing the TENS.

      Then yesterday I took my morning round of pills and then I *thought* I forgot the Ditropan so I took another one.

      Then this morning was not shaping up to be as good as yesterday. So I thought, "Hmmm maybe yesterday I accidentally took two of the Ditropan pills."

      So after I thought about that I took a second Ditropan and started feeling better within about two hours! I can't believe the difference.

      I think it's just a combination of the meds and a strict diet. Plus we are coming off of the allergy season at least a little. It's not as bad as it was in March..........
      Lee Ann
      Current Rx Meds:
      Atarax, Ditropan, Elmiron
      Prior to pregnancy: The above 3 meds PLUS Neurontin, Topamax, Loratadine, continuous OrthoCyclen, Lidocaine Patches PRN, Temazepam PRN, & Vicodin PRN
      Hooray for babies!
      Misc. lifesavers: Hot baths, ThermaCare Heat Wraps, Ice Packs. The IC Diet has changed my life.
      Didn't work for me:
      Detrol LA, Amitryptiline, Morphine, Percocet, TENS unit, Interferential Pain Stimulator Unit, Hypogastric Plexus Nerve Block
      IC (Mod-Severe) since 1996

      UPDATE: 5/21/08 Pregnancy and breastfeeding afterwards have alleviated my IC symptoms more than anything, EVER. Most days are 100% pain free & I now have normal frequency (as long as I take these 3 meds).


      My little sweetie! Jack weighed 9 lbs 12 oz and was born via c-section on Feb. 28, 2008...

      Comment


      • #4
        Thats great! What are you doing differant?
        Hugs
        Ronda

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


        Link to Patient Handbook:
        http://www.ic-network.com/handbook/

        Diet Reference Sheet:
        http://www.ic-network.com/diet/icndi...tsheet0909.pdf

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        Comment


        • #5


          Im so happy for you!
          Meds: Percocet PRN; Pyridium PRN. First symptoms Dec 2005. Diagnosed in March 2006.

          I am the proud mom of a two year old boy! I was lucky enough to be in remission my entire pregnancy. If you have any questions regarding my pregancy, delivery, breastfeeding, or pumping, feel free to contact me!

          Im on Facebook! Just tell me you are from the ICN. Look me up under Kim Wayne.

          I love working as a CNA in a nursing home. Started school in August part time. Going for my LPN!!!!

          Comment


          • #6
            yay!!!! that is wonderful!


            Jessica
            diagnosed with IC in 10/2006

            Current meds:
            Elmiron, 100 mg twice a day
            Kyolic Garlic, 2-4 pills per day
            Zoloft, 25mg per day
            Aviane BC
            Multivitamin and Glucosamine (as needed)

            I will not allow IC to control me or my life!

            Comment


            • #7
              wwwwwwwwwwwwooooooooooooohhhhhhhhhhhhhhoooooooooooo
              'The will of God will never take you where the Grace of God will not protect you.'

              Comment


              • #8
                yeah....I hope that extra dose keeps working, if that is whats doing it
                Onset of symtoms November 1, 2006

                Diagnosed December 8, 2006 with cysto/hydrodistention... Gradual relief with elmiron around month two, keep feeling better and better. and then remission

                2008 Update...still in remission

                Diagnosis: IC
                Meds: Elmiron 300mg/day, hydroxyzine 25 mg 1x/day

                Myspace: Add me! Im always looking make new IC friends. http://www.myspace.com/45171133

                Comment


                • #9
                  Isn't it just wonderful!!!???!!! I am so happy for you!!!!
                  http://www.TheCraftyEwe.etsy.com

                  Comment


                  • #10
                    Sounds like it was the 2 Ditropan? I know when I was in a bad flare a few weeks ago, my doctor told me to take 2 Vesicare (I'm on 5mg usually but he upped it to 10mg for a few days--) and it helped I'm now back to 5mg and when I start to feel bad again I just go back to 10mg for a couple of days. So this might be the same thing with you? Whatever it is -its great. Keep it up.:woohoo: :woohoo:

                    Comment


                    • #11
                      Very good news. :woohoo:
                      Sharon

                      Shopping??? Did someone mention shopping? I'll get my hat... ;-)

                      Where I can be found most days.



                      Link to the ICN Patient Handbook:
                      http://www.ic-network.com/handbook/

                      Link to the IC Diet:
                      http://www.ic-network.com/diet/


                      IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                      Comment

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