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What exactly is remission?

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  • What exactly is remission?

    I am still very new to this whole IC life. I was just wondering what it means to be in remission. Is remission IC symptom free? Is remission the space between horrible IC flare-ups with some IC symptoms?
    IC Diagnosed: January 3, 2007
    Pelvic Floor Dysfunction
    Vulvodynia

    Meds:
    Estrostep FE
    Urocit K
    Prelief (as needed)
    Urelle (as needed)
    Darvocet (as needed for pain)
    Singulair (for seasonal allergies affecting the IC)
    Cymbalta (for the pain)

    Have been on and off too many to list because of adverse reactions...

  • #2
    To me remission was being able to have days at a time where I could "forget" I had IC. I was able to go about 4mos with very few flares-or even days when I had any symptoms at all. I was able to eat more "bad" foods too. Awe....can't wait to see that again!!!!

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    • #3
      To me a remission is when my sypmtoms are low to none and I can be much more flexible with my diet. I was in remission for much of the past two to three years and it was wonderful! I almost forgot I had ic sometimes.
      mom_in_ma

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      • #4
        I have had remission where I had no symptoms and ate and drank almost everything I wanted. I limited the bad food items. I had a 9 month remission and a 2 months remission. Then I have flares and some days with mild symptoms that I can ignore. I love the days when I forget I have IC and feel like a normal 26 year old with normal problems.

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        • #5
          I had a remission where it lasted for 5 years! The only thing that I took was my medication which was Elmiron, nothing else!. I was able to eat and drink what I wanted, didn't have any pain, freqency, etc. Then I had my hyster. in 2000 and BANG!! there it went, and since then I had "tiny remissions" I somewhat have to watch what I eat , (I'm not as diet sensitive as a lot of people are). I'm still on Elmiron of course; vesicare;plus Effexor. Pain meds. I have a hydro when needed, usually every 6-8 months or so. Hope this helps.

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          • #6
            Thank you all who have responded... this helps. It also helps to have something to look forward to. I have been on the IC roller coaster for about a year now and only diagnosed since January '07. Some days it doesn't even seem possible that remission is in sight. Especially since I wasn't exactly sure what people were calling remission. So thank you!
            IC Diagnosed: January 3, 2007
            Pelvic Floor Dysfunction
            Vulvodynia

            Meds:
            Estrostep FE
            Urocit K
            Prelief (as needed)
            Urelle (as needed)
            Darvocet (as needed for pain)
            Singulair (for seasonal allergies affecting the IC)
            Cymbalta (for the pain)

            Have been on and off too many to list because of adverse reactions...

            Comment

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