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How Fast Does Remission Usually Happen

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  • How Fast Does Remission Usually Happen

    For those who have gone into remission, Did you just wake up one day and feel no more symptoms, or was it more gradual? I have been feeling better each day I have been on elmiron almost 3 months and it just may be that it is working well for me, but I have not felt as bad as when it all first started several months ago. I feel less and less symptoms each day. I know not to get my hopes up, but I will enjoy every second that I feel better and I hope this for everyone else too!!

  • #2
    That's great that you are feeling better! My remissions have always been gradual. I wish I woke up one day and had no more symptoms!


    • #3
      My symptoms have gradually declined also. I started feeling bad in January and was told in March they thought I had IC. Began Elmiron and Hydroxzine and am feeling better IC wise. Still battling allergies and yeast infections, but IC seems to be improving.
      Last edited by KristiV; 07-07-2007, 05:35 AM. Reason: Typo
      Diagnosed with IC - March 2007
      Diagnosed with vulvodynia - June 2007
      -Lots of prayer
      -Taking Elmiron and Hydroxzine (stoppped because of pregnancy)
      -Taking Prelief as needed (stopped because of pregnancy)
      -IC diet


      • #4
        HI, It's been gradual for me too. I've been on Elmiron for almost a year now and all the other stuff I take....and right now I'm doing well. I feel like I should knock on wood or something and not even say it outloud! LOL I watch what I eat so I don't eat anything that'll make me flare. Roxie

        Double Spinal Cord Stimulator surgery 8/09
        Unsuccessful MiniArc sling surgery 12/07
        Dx'd Hypothyroid
        Dx'd Chronic Axonal Neuropathy & Myopathy
        June 2007
        Dx'd IC May 2006 (after suffering for 25+ yrs!)
        First Cysto 1979
        First Hydro 1981 (Many treatments since then!)
        Collagin"Durasphere" injections for urethra
        Gall bladder surgery Aug. 2004
        Gastric Bypass Dec. 2004
        Dx'd: Barrett's Esphogus July 2004
        Dx'd: Vaginal Atrophy 2005
        Bladder surgery 2000
        Dx'd: IBS 2000
        Hysterectomy (fibroids) 1999
        Laminectomy 1989
        Dx'd: Degerative Disk Disorder 1989

        For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
        I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra's amazing stuff!!:woohoo:


        • #5
          Hey everyone...
          It is so great to hear that you are all feeling better, al though gradually...
          I was wondering if any of you have gone into remission, without taking a lot of medication?

          "Its a troublesome world all the people who're in it
          Are troubled with troubles, almost every minute
          Just tell yourself Duckie, you're really quite lucky
          Some people are much more, oh muchly much more
          unlucky than you!" Dr. Seuss


          • #6
            i too have slowly been getting better.but i havent been taking meds from the doc. i tried that but have had bad side effects off them- so i'm going the natural route. needless to say it's still alot of pills(at 1st,cutting dose back now,so well see,ok so far!!) but i like it better becuase theres no side effects! hope you keep feeling better.


            • #7
              For me it happened gradually, then one day I was like "huh, I haven't felt like crap in a while so I guess that means I'm getting better". I was also slowly able to add a few things back into my diet, a piece of chocolate here and there just to test it and I felt fine. Glad to hear you're feeling better!!! Hope it continues for you.


              • #8
                Originally posted by JDOOKIE
                i too have slowly been getting better.but i havent been taking meds from the doc. i tried that but have had bad side effects off them- so i'm going the natural route. needless to say it's still alot of pills(at 1st,cutting dose back now,so well see,ok so far!!) but i like it better becuase theres no side effects! hope you keep feeling better.
                J Dookie,

                I would so like to go the natural route. What are you doing?


                • #9
                  wow lets see all the stuff i've taken-gotta get my list out-lol. and some people have problems off these thing but i have been lucky & they have helped some
                  aleo vera-liquid-still taking
                  cod liver oil-still taking
                  goldenseal root/echinica-take no longer than 2 weeks-done
                  olive leaf extract-still taking
                  curbita-still taking
                  d-mannose-still taking
                  ultimate flora-still taking
                  and i also take vita strips(i dont have problems like alot of people do with vita.)

                  i have elmiron but so scared to take it becuase i had such bad side effects off everything else the doc. gave me. that will be last resort kinda thing. you can find alot of stuff that could possible help of this site. hope you find something to help. have a great day.


                  • #10

                    Hi - I am curious about the cubita. I've heard of the herb, but not for IC. How did you know to take that? PV
                    I got IC in 1970! I was not diagnosed until 1991. I've tried many drugs and therapies but I tend to only resort to drugs when in a flare because when I am not in a flare (from being good on diet), I suffer only from small bladder volume (like about 7 ozs.) and peeing will relieve the discomfort. When I am feeling relatively normal, I say to myself I am glad I am not on a drug. When I am in a flare, I say, why am I not on a drug! I've recently have been trying to solve my connective issue problems in general. I look to diet and herbs mostly unless it gets really bad. I still think there is great hope for each individual finding a path to healing and there are many.


                    • #11
                      an herblist recommended it to me. it's to support healty bladder function in men & women. on the box it says, unique ability to enhance bladder function, helps bladder muscles, and supports normal empting of the bladder. i have not norrowed it down yet to this but somethings working for me. hope you find something too!


                      • #12
                        Herbs etc

                        I am trying both natural supplements and Elmiron. I recognize that it will make it harder to figure out what is working if anything does, but I figure I'd rather get better first and then try to eliminate the meds one by one at that point.

                        Today marks my two weeks on Elmiron. The headachy feeling seems to be under control, and I don't think it has any major repercussions on my stomach. I noticed some hair loss, but it wasn't dramatic and I think it might actually already be improving.

                        Personally, I am willing to put up with a lot of other side effects to get the IC under control.
                        Spring/summer 2009 - diagnosed with H Pylori and vitamin D deficiency (both treated successfully), hormonal imbalance, and food allergies
                        July 2007 - PFD confirmed by physical therapist
                        June 2007 - start of IC symptoms.
                        May 2007 - start of significant IBS symptoms
                        Summer 2005 - migraines became chronic

                        Conditions: IC, IBS, PFD, migraines (currently under control), back problems

                        Current meds: bio-identical hormone creams, vitamin D, zinc, Captomer, magnesium oil, D-Mannose, FemDophilus, magnesium ascorbate

                        Other treatments: massage, mind-body healing


                        • #13
                          I'm doing the same thing. I want to get rid of the pain- then I'll figure out what to stop taking. So far, I've only tried marshmallow root tea CystaQ and plain Quercitin It is expensive to try some of these natural remedies, only to find you can't tolerate them. Then again, it is expensive to fill prescriptions to find you can't tolerate those either-which has happened to me twice. I do have a sample of aloe vera capsules and MSM Glucosomine(sp). I'll try one of those next. I'm going to research the Korean Angelica and cubita too.


                          • #14
                            I seem to have two kinds of remission, if it can be called that.

                            The first, more common, and more permanent one, is very gradual for me. I will take 6 months to a year to achieve full remission and only with very strict management of my medications, stress level, and diet. I have actually only done this twice, as much of the rest of my time with IC was spent going "LALALALALAA I CAN'T HEAR YOU IC!!!"

                            The other kind of remission is yes, in fact, I wake up one morning and don't have any pain, any urgency, nada... Then for several days, a week, maybe at most 2 weeks, this will continue. I may have a tiny little tinge of pain here and there, and the urgency never comletely goes away, but all in all, Im at most a 1 on the "interfering with my life" scale. This sort of remission is extremely fragile, and something as simple as a sip of lemonade will kick it out of wack.

                            I don't have the foggiest idea why my IC is so inconsistent, but I'm thankful for these days when I feel myself again regardless of the cause, though I also am determined to find some of these causes
                            I have spent my entire life looking for a truly great struggle, a cause, a reason to continue fighting, and living...

                            I found many challenging and noble causes to pursue, but God already had one chosen for me, one far more challenging than anything I had imagined, one that I cannot refuse, and that I cannot fail...

                            When this life is over, I will be far more tempered than I ever could have achieved without His intervention. Did God give me IC?? Absolutely.


                            • #15

                              Hi - I am finding that Cramp Bark, Marshmallow and Cornsilk are all very helpful herbs to take in a tea form regularly.