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How Fast Does Remission Usually Happen

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  • tracy3434
    replied
    Gradually getting better

    I have been on elmiron for about 8 months now and noticed a gradual decline in the amount of times I was going to the bathroom. When I was first diagnosed, it got so bad that I could not walk from my office to the subway (a 15 minute walk) without finding a STARBUCKS to pee at! So depressing. But now, there are days I go for up to 4 hours without having to pee. I sometimes get flares that last about 4 or 5 hours (right now I am having one I think because I had vinegar on my salad for lunch). I am living proof that there is hope and many people get better. I think this will be a life long struggle for me - but I certainly have MANY more good and "normal" days than I used to. Much more smiles and A LOT less tears!!

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  • curls
    replied
    Herbs

    Hi - I am finding that Cramp Bark, Marshmallow and Cornsilk are all very helpful herbs to take in a tea form regularly.

    Valerie.

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  • Thereisnopain
    replied
    I seem to have two kinds of remission, if it can be called that.

    The first, more common, and more permanent one, is very gradual for me. I will take 6 months to a year to achieve full remission and only with very strict management of my medications, stress level, and diet. I have actually only done this twice, as much of the rest of my time with IC was spent going "LALALALALAA I CAN'T HEAR YOU IC!!!"

    The other kind of remission is yes, in fact, I wake up one morning and don't have any pain, any urgency, nada... Then for several days, a week, maybe at most 2 weeks, this will continue. I may have a tiny little tinge of pain here and there, and the urgency never comletely goes away, but all in all, Im at most a 1 on the "interfering with my life" scale. This sort of remission is extremely fragile, and something as simple as a sip of lemonade will kick it out of wack.

    I don't have the foggiest idea why my IC is so inconsistent, but I'm thankful for these days when I feel myself again regardless of the cause, though I also am determined to find some of these causes

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  • LouLou
    replied
    I'm doing the same thing. I want to get rid of the pain- then I'll figure out what to stop taking. So far, I've only tried marshmallow root tea CystaQ and plain Quercitin It is expensive to try some of these natural remedies, only to find you can't tolerate them. Then again, it is expensive to fill prescriptions to find you can't tolerate those either-which has happened to me twice. I do have a sample of aloe vera capsules and MSM Glucosomine(sp). I'll try one of those next. I'm going to research the Korean Angelica and cubita too.

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  • jamie_visiting
    replied
    Herbs etc

    I am trying both natural supplements and Elmiron. I recognize that it will make it harder to figure out what is working if anything does, but I figure I'd rather get better first and then try to eliminate the meds one by one at that point.

    Today marks my two weeks on Elmiron. The headachy feeling seems to be under control, and I don't think it has any major repercussions on my stomach. I noticed some hair loss, but it wasn't dramatic and I think it might actually already be improving.

    Personally, I am willing to put up with a lot of other side effects to get the IC under control.

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  • JDOOKIE
    replied
    purpleviolet,
    an herblist recommended it to me. it's to support healty bladder function in men & women. on the box it says, unique ability to enhance bladder function, helps bladder muscles, and supports normal empting of the bladder. i have not norrowed it down yet to this but somethings working for me. hope you find something too!

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  • purpleviolet
    replied
    cubita?

    Hi - I am curious about the cubita. I've heard of the herb, but not for IC. How did you know to take that? PV

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  • JDOOKIE
    replied
    loulou
    wow lets see all the stuff i've taken-gotta get my list out-lol. and some people have problems off these thing but i have been lucky & they have helped some
    aleo vera-liquid-still taking
    cod liver oil-still taking
    goldenseal root/echinica-take no longer than 2 weeks-done
    gr8-dophilus-done
    olive leaf extract-still taking
    bone-up-done
    curbita-still taking
    d-mannose-still taking
    ultimate flora-still taking
    and i also take vita strips(i dont have problems like alot of people do with vita.)

    i have elmiron but so scared to take it becuase i had such bad side effects off everything else the doc. gave me. that will be last resort kinda thing. you can find alot of stuff that could possible help of this site. hope you find something to help. have a great day.
    jessica

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  • LouLou
    replied
    Originally posted by JDOOKIE View Post
    i too have slowly been getting better.but i havent been taking meds from the doc. i tried that but have had bad side effects off them- so i'm going the natural route. needless to say it's still alot of pills(at 1st,cutting dose back now,so well see,ok so far!!) but i like it better becuase theres no side effects! hope you keep feeling better.
    J Dookie,

    I would so like to go the natural route. What are you doing?

    Leave a comment:


  • meme
    replied
    For me it happened gradually, then one day I was like "huh, I haven't felt like crap in a while so I guess that means I'm getting better". I was also slowly able to add a few things back into my diet, a piece of chocolate here and there just to test it and I felt fine. Glad to hear you're feeling better!!! Hope it continues for you.

    Leave a comment:


  • JDOOKIE
    replied
    i too have slowly been getting better.but i havent been taking meds from the doc. i tried that but have had bad side effects off them- so i'm going the natural route. needless to say it's still alot of pills(at 1st,cutting dose back now,so well see,ok so far!!) but i like it better becuase theres no side effects! hope you keep feeling better.

    Leave a comment:


  • jubejube
    replied
    Hey everyone...
    It is so great to hear that you are all feeling better, al though gradually...
    I was wondering if any of you have gone into remission, without taking a lot of medication?

    Leave a comment:


  • Roxie2007
    replied
    HI, It's been gradual for me too. I've been on Elmiron for almost a year now and all the other stuff I take....and right now I'm doing well. I feel like I should knock on wood or something and not even say it outloud! LOL I watch what I eat so I don't eat anything that'll make me flare. Roxie

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  • KristiV
    replied
    My symptoms have gradually declined also. I started feeling bad in January and was told in March they thought I had IC. Began Elmiron and Hydroxzine and am feeling better IC wise. Still battling allergies and yeast infections, but IC seems to be improving.
    Last edited by KristiV; 07-07-2007, 05:35 AM. Reason: Typo

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  • mom_in_ma
    replied
    That's great that you are feeling better! My remissions have always been gradual. I wish I woke up one day and had no more symptoms!

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