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  • newsgirl
    replied
    Thank you all so much for your help. I will definitely try the Azo. I am totally giving my bladder a rest from exercising etc. I'm praying this was a one time flare.

    For the person with the fibromyalgia: If I stretch out, take very hot showers and get more than 6 hours of rest a night, I keep the fibromyalgia at bay. The first minute I slack on one of those, my fm flares up.

    Take care,
    Allison

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  • ICNDonna
    replied
    It's very possible that the increased exercise could cause a flare. I know I have to stick with "smooth" exercises.

    Donna

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  • DaniBelle
    replied
    In Remission!!!!

    Some of you on this site have probably wondered where I went!! All of the sudden, 1 day after Memorial Day, I stopped having IC flares. I went from having 2 instillations at my GYN's office per week and 3 or 4 home instills per week to only 3 instills in the past month and a half!!! I can't believe it! I'm praising God and thanking my doc for helping me get to this point. They had told me that some sufferers could go years without relief and just all the sudden....no more flares, no more burning, no more pain. I am amazed and still praying everyday that God will help me stay this way. I have started adding some foods back (SUGAR still a big NOOOOOOO!), but am being careful to try a little bit at a time. I was able to drive 3 3/4 hours to my parents' home without any pain and the usual big flare after sitting for more than an hour in a car. I am so thankful that IC is 'leaving me alone' for a while. I hope it lasts! My esphogitis asthma has even gotten so much better, it hardly bothers me at all (except when I swallow larger bits of chicken). If the Fibromyalgia would go away, I would feel alive again!!! I am reading a book by Dr. St. Amand who suggests a protocol of Guaifenesin and no salicylates (sp?). I haven't started it because I want to make sure my doc says it's o.k.. I spoke with a friend of my Mom's who had FM for 15 years. She went on Dr. Amand's program and was FM free in about 3 months. Sounds too good to be true, but I'm going to try it.

    Take care!

    Dani

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  • Roxie2007
    replied
    HI Allison, Sorry to hear about the flare. They do sometimes seem to come out of the blue! Maybe the treadmill.....maybe not. Have you tried Azo for the frequency and pain? It always helps me when I flare. Hope it helps you and this flare ends quickly and you get back to remission! Roxie

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  • mom_in_ma
    replied
    Hope your flares calms down soon. It could definitely have been the treadmill. Unfortunately, only the universe knows how long a flare will last.

    Also, know you're not alone. It's really hard emotionally to go through a flare after you've been in a remission. Take care of yourself.

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  • newsgirl
    started a topic Questions about remission ending

    Questions about remission ending

    I had been symptom free since July 10, 2006. I have been in a flare since last Thursday. Did I do something? Is this seasonal, or am I going to be sick all over again? If I am going to be sick again will it last months, or will I go into remission again? Is this something only God knows, or is there data on this?
    I didn't change any of my meds. I was doing great with Elmiron and Elavil. I went for a urinalysis today to make sure it's not a uti. I am almost hoping that it is, because I don't want to live the way I did before. I am a newscaster who gets up at 3 a.m. to go to work. You can just imagine how hard it is for me to get up at that ungodly hour in a flare, drive 35 minutes, and then be happy on-air. I know things could be worse. I am very blessed, but I was so sick last year that I considered going out on disability. I just want to be able to take care of my kids. I don't want to sit on the couch all day with a heating pad on my bladder.

    The only thing I did different was run on the treadmill. I normally go at a medium speed, but last week I was running really hard on it. Did I damage my bladder? Does that sound crazy?

    Last question: What do I do about the urgency and pain during a flare? (Besides using a heating pad.) I can't take an anti-inflammatory, and I don't want to take narcotics. How will I drive or take care of my kids?

    Thank you all for caring. You have been a great blessing to me during great times of despair.

    All my love,
    Allison
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