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Still Doing Good

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  • Still Doing Good

    I was just thinking about this and it's about how many times I void per day. These days I void about 15 times a day; some days maybe 10. I consider myself to be in remission, because I can hold a job as a substitute teacher. I would love to go only 4 to 5 times a day like I used to before IC. I used to go about 50 to 70 times per day when I first got IC, so I am doing much better. I believe IC can heal and that's because I'm living proof! For my New Year's Resolution, I decided to go gluten free, and I'm feeling even better. I knew I was sensitive to it, but I didn't realize how much till I avoided it for a long time. My goal is to be completely healthy by the time I reach 40. I'm 39 and 4 months right now, so I have 8 months to reach my goal. I wish I could get back all the years of struggling and poor health, but I guess what doesn't kill you can only make you stronger. I wish good health to all of you!

  • #2
    Thank you for such a positive post! I'm sure it will be helpful and inspirational to others suffering now. I remember how you weren't sure you'd be able to go ahead with your teaching career and wish you much happiness

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest

    Current treatments:
    -IC diet
    -Elavil 50mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic when doing an instillation to prevent UTI
    -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!


    • #3
      Thanks! I was thinking about one of the reasons I am able to make it as a teacher with a bladder problem and it's because of how the modern classroom is set up these days. It is rare to have uninterrupted teaching these days. On Friday, this is no joke, I had 9 different adults come in every 5 minutes and interrupt during language arts. Well, these interruptions help me out. They walk in to hand me this or that and I say "Hey, can you watch the classroom for a minute, so I can go use the bathroom?" They always say yes. Unfortunately, Friday was also the day I caught strep throat. So, here I sit, a little bored, not tired really, and nothing on the tube. Looking forward to returning to work on Tuesday. I have a fun assignment on Tuesday scheduled at a very nice country school. Anyways, I don't know if I could be a cashier, but subbing has been working out, as far as IC is concerned. :woohoo:


      • #4
        Good for you! We cannot afford to lose any single teacher with enthusiasm like you. Glad subbing is working out for you, that must be fun being able to go into different settings, and challenging as well! You know, if you need to, all you gotta do is tell them you have a bladder problem, trying to explain IC is sometimes useless, but if someone asks...we need to educate adults as well. Hope you can stick with it and hang in there! This country needs you! Jill, wife of Bob


        • #5
          What is it that made you think you had problems with gluten? I have been wondering about that too. I talked to a few people that have gone gluten free and they say they feel so much better. These are people without IC.
          Link to the patient information, everything from What is IC? to Disability

          American Urological Association Clinical Guideline
          Diagnosis and Treatment of Intersitial Cysitis/Painful Bladder Syndrom


          • #6
            I guess it all started a few years ago. I had bad eczema on the underside of my arms develop. They were dry, red, scaly, red patches, and no amount of lotion helped. I was trying to lose weight, so I went on a low carb diet. The eczema disappeared quickly. I also felt more energy. When I went low carb, I stopped eating gluten, but didn't make the connection. For some reason, I would do well on a low carb diet, but get discouraged because it is hard to eat that way due to peer pressure and lack of convenience, etc. I started reading up on connections to ADD, eczema, thyroid problems, and how they all could be connnected with gluten, all of which I had. For New Year's this year, I was home and thinking about my health and what my resolution should be and I decided I would try to give up gluten again. I decided to really stick with it this time, as in for life. The first week, I had a bad headache, but after that I started feeling better and I felt calmer and clearer and more energy. So, I guess it was just accidental discovery, really.


            • #7
              No flour, sugar free peanut butter cookies are really good! If you use 2 eggs instead of one, they turn out fluffy, and you would never know they are gluten free. I got the recipe off the net, just google no flour peanut butter cookies. I live on these lately!