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How many use it for pain and how much?
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I use it only occasionally.
DonnStay safe
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Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
I had used it in the beginning when my symptoms first started. I had used vicodin 5/500 and then was switched to Norco 7.5/325 due to Norco having less acetaminophen. It seemed to work really well for about two hours, but then just made me kind of restless and interrupted my sleep.Comment
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I took one a day at night when I was first diagnosed. Now, it is as needed. I have been very deliberate about not using it much.
Atarax is also a good medication. It settles down the mast cells, helps you reduce anxiety, and helps you sleep.Julie Beyer, MA, RDN
IC Dietitian, Patient Advocate, Speaker, & Author
Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!
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I have been taking Vicoden off and on for the last 10 years. I find that it does help me some of the time, but I do rotate it with percocet. I take vicoden for a period of time and then I will switch to percocet then switch back to vicoden. We do that so that I don't get so used to one that it stops working.Started Vaginal Valium Suppositories April 2014
Hysterectomy April 2003 (for abdominal pain),Diagnosed with IC August 2003
Diagnosed with Pelvic Floor Disorder 2004,Had right ovary and fallopan tube removed 2005
Diagnosed with diverticulosis 2006,Interstim December 2006,Home Instillations 2007-not effective
Diagnosed with Fibromyalgia November 2007,Appendectomy February 2008,
Interstim repair December 2008,Removal of the Interstim August 2011,
6 Hydrodistentions from 2003-2009 Diagnosed with restless leg syndrome March 2014
Diagnosed with Raynaud's Syndrome November 2013
Ambien 5mg for sleep.
Elivil 50 mg at bed
Lisinopril 20mg in AM
Effexor 225 mg
Oxycodone 10 mgs 2 x a day for pain
Baclofen 20mg 3x a day
Phenazopyridine 200 mg as needed
Omeprazole 20 mg at night
Lyrica 450 mg daily
Requip .50 mg at night
Ketorolac 10 mg as needed for migrainesComment
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I never could figure that out about the pain meds. You would think they would make you sleep since all the warnings on them talk about causing drowsiness etc. so if I couldn't sleep because of pain and took a pain med, the pain would subside but then I still couldn't sleep because of the pain med! Geez- I couldn't win on that one.Comment
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I think most pain meds have caffein in them as filler or to make them work better. I have much trouble sleeping on them. I noticed at the hospital when given pain meds I have no trouble. I'm thinking they are giveing me something without filllers. Just an opinion. We would need to do a search on this. Hugs, ZiggyComment
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When I am in pain and take a pain medication, as soon as the pain is relieved, I don't have any problem going to sleep.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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I take as little as I can, usually just a 1/4 of the pill is enough but sometimes I need a 1/2 a pill. Not a good idea to take these during a work day....so I wait till I get home or pop one on the way home.Dg. with IC 2/15/10
Other conditions: depression, ADHD, lactose intolerance, celiac disease, chronic fatigue syndrome, IBS-C.
Medications I'm on: Vyvanse 70mg, Xanax 1 mg as needed, Wellbutrin XL 150 mg, Vicodin 5/500 as needed for pain, Microgestin 1/20 continuously.
Supplements I'm taking: Chondroitin Sulfate, N-acetyl-glucosamine, MSM 3gr/day, Pancreatin, B-5, Ester-C, and marshmallow root teaComment
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I took them multiple times a day, daily, for the first few months after my pelvic pain began. (July through late October). My doctor knew it was the only way I could get out of bed, and was liberal in prescribing them. After diagnosis I tapered off of them as I began muscle relaxers and Elavil. By December I was down to using them only on the first day of my period when my pain would get worse. I haven't had a Vicoden now since February I think. There have been a few days when I WISHED I had some, LOL. I was taking the 5/500's. My mom gave me a lot of flack about "getting addicted" to them, but I pretty much told her where to shove it. They were the only thing keeping me from killing myself from the pain, quite honestly.Symtoms started July 2010.
Severe pelvic floor pain only.
2 time PT graduate!
In medical remission since August 2011; able to eat and drink anything I want currently.
IC meds:
200 mg Elmiron in the morning
100 mg Elmiron @ night
Macrobid after intercourse
03/11 07/11 01/12
If at first you don't succeed: 07/26/2013!Comment
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Up till recently I took it on a daily basis for my pelvic pain, but after awhile it really didn't help much, and when I would ask my pain doctor (don't go to him anymore) their answer was to raise my dosage. I found a new doctor recently, and he put me on cymbalta I have been on it for a few weeks now, and I have noticed a difference.Comment
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