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Once in remission, how do you stop focusing on your condition?

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  • #16
    I agree with you on obsessive thoughts

    HI its os nice to here there are others who feel the same way, I often think I cant be having this much pain its unbearable every minute of the day. I am exsited about the 27th im off the see a specialist to see if mu pudendal nerve is trapped. has anyone had this looked at. the symptoms seem to mimic that of ic. I was still hoping to here if anyone lives i Houston Texas area. So please let me know if you do.

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    • #17
      I have read all the recent posts on this subject and all I can say is that so many of us have the same concerns from day to day. For myself, I try on a good day and as I go into remission again I try and keep myself as busy as possible along with trying to shove out any IC thoughts. My one problem is as this happens I tend to losen up my hold on my diet which we all know will get us back into trouble. I have had a hard year as it seems that about every two weeks I come up with another physical problem, latest being tooth extractions when I have been devoted to taking care of my teeth and seeing my dentist on a regular basis, what's up with that I ask. Maybe it's not only an extraction but a distraction. IC can be like a cloud always hanging over your head. My first round my goal was to just get a hold on it which I did. Then I was in remission for 2 yrs and boom, there it was again. What a disappointment. For the first time I could understand how this whole thing can get you down. Dr. Oz had a great program today about cronic pain and pain management. He was very encouraging. Just wanted to add one more thing. For anyone who may have pain after they urinate, my uro told me to elevate my legs with my body flat for one hour every night. I thought it as a flaky reply but tried it anyway. Guess what, it worked. No more pain after I urinate. Hope this helps someone else out there. Good night all. Judy Gee

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      • #18
        I am the same way. I don't like to leave the house because I don't know what my body is going to do. Bathroom trips are a nightmare and I've had to leave several events (if I even went to begin with) because of sudden pain/burning.
        "Blindfolded fear does not lead to an awakening. Questioning with boldness does":woohoo:

        Diagnosed: Autoimmune Progesterone, P.F.D., Vulvodynia, IC.

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        • #19
          progesterone

          Originally posted by Christinew1899 View Post
          I am the same way. I don't like to leave the house because I don't know what my body is going to do. Bathroom trips are a nightmare and I've had to leave several events (if I even went to begin with) because of sudden pain/burning.
          Hi ,Just needed to ask you what autoimmune Progesterone is and how it was discovered, I am at [email protected] is a dr in Austin Texas who is helping IC. He deals with the bodies allergies to hormones. Just wondered if we were talking about the same thing here. How were you diagnosed with this?If so I can get my daughter to send me his details.He has wrote a book about this to. just need to get his name from her again. Just let me know if this is what flares up your IC, and what it is.
          Helen

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          • #20
            Originally posted by helen newcastle View Post
            Hi ,Just needed to ask you what autoimmune Progesterone is and how it was discovered, I am at [email protected] is a dr in Austin Texas who is helping IC. He deals with the bodies allergies to hormones. Just wondered if we were talking about the same thing here. How were you diagnosed with this?If so I can get my daughter to send me his details.He has wrote a book about this to. just need to get his name from her again. Just let me know if this is what flares up your IC, and what it is.
            Helen
            Oh I just wondered if anyone knew why when I get my Period does my IC bet better. not the week before but the week im on it, Helen x

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